IntellectAbility: Changing the Narrative for At-Risk Populations

IntellectAbility: Changing the Narrative for At-Risk Populations

Preventable deaths among people with intellectual and developmental disabilities (IDD) were treated as unfortunate but inevitable for too long. Alex Green, in his new book, ‘A Perfect Turmoil: Walter E. Fernald and the Struggle to Care for America’s Disabled,’ argued that the mass institutionalization of people with intellectual and developmental disabilities is not a tale of ancient times. Societal isolation and custodial care led to loss of identity and independence for people with disabilities. The birth of IntellectAbility was to challenge that norm. Founded by Karen Green McGowan, IntellectAbility exemplifies excellence and revolution in health and wellness for people with at-risk of dying from preventable causes. Having been awarded the title of one of the most “Innovative Companies to Watch 2026” by The CEO Views, Craig Escudé, president of IntellectAbility, narrated the story behind the company’s foundation and the journey it undertook to emerge as a revolutionary force driving change for people with disabilities.

The Genesis

Karen founded IntellectAbility after confronting a reality that many were reluctant to face: people with intellectual and developmental disabilities were dying prematurely from largely preventable causes. These weren’t isolated tragedies. They were patterns. Patterns of aspiration, unmanaged seizures, untreated chronic conditions, preventable bowel obstructions, and subtle warning signs that were missed until it was too late.

While addressing the situation, Karen dared to ask the difficult question: What if we stopped reacting to these events and started predicting them? That question became the foundation of IntellectAbility. Dr. Craig Escudé, carried the same conviction forward after stepping into leadership as the company’s president. In his words, “As a physician who has worked closely with people with IDD for decades, I had seen the same patterns Karen recognized.” Too often, the system operated in crisis mode. Despite thoroughly documenting the incidents, it did not prevent the next ones. What makes IntellectAbility unique is that it focuses on identifying risk before it becomes tragedy.

The Proactive Approach

Being grounded on the philosophy that vulnerability is not synonymous with inevitability, IntellectAbility developed and expanded the Health Risk Screening Tool (HRST). The HRST is a structured and validated way to identify and stratify health risks in people with IDD. The HRST doesn’t replace clinical judgment; it enhances it. It translates complex medical vulnerability into clear, actionable information that direct support professionals, nurses, clinicians, families, and administrators can understand and leverage.

Over time, the company witnessed the formidable power of this shift. Organizations that once operated reactively begin thinking differently. Instead of asking, “What went wrong?” after a hospitalization, they begin asking, “What risks are emerging now?” Instead of assuming instability is inevitable, they start identifying early warning signs and intervening sooner.

Reshaping Person-Centered Support

True person-centered support is not just about honoring preferences; it’s about protecting health in ways that preserve dignity and independence. If someone has an elevated aspiration risk, that information doesn’t limit their life; it informs safer supports. By embedding risk awareness into individualized planning, IntellectAbility ensures that wellness becomes part of the person-centered conversation. Reducing preventable illnesses allows a person to focus on living their life to the fullest.

Offerings that Speak for Themselves

Today, IntellectAbility provides health risk identification, health and safety training, and person-centered services to state developmental disability agencies, provider organizations, and managed care entities across the country. “Our platform delivers both individual-level insight and population-level intelligence,” mentioned Craig. The company believes that tools alone do not change outcomes. Education does. Hence, one of their greatest commitments is workforce empowerment. Direct support professionals are often the first to notice subtle changes in health status. When they understand why certain risks matter, they observe differently. Moreover, education improves outcomes and reduces healthcare costs.

Innovation of Predictive Insight

Innovation for the company is not about technology for technology’s sake. It is about predictive insight. The company continues enhancing analytics within its platform to help organizations detect patterns of decline earlier than ever before. By expanding integration capabilities with other systems, IntellectAbility ensures risk information is embedded in daily decision-making rather than siloed in reports.

Breaking New Grounds

In its journey, IntellectAbility has achieved milestones that affirm the impact of its approach. The HRST has gained national recognition as a leading health risk identification instrument for people with IDD. Organizations implementing structured risk mitigation strategies have documented reductions in preventable morbidity and mortality. Partnerships with states and managed care organizations continue to expand its reach. However, one of the meaningful milestones is cultural change. Conversations about preventable death are no longer avoided. Risk reduction is increasingly recognized as an essential component of quality services. That shift represents progress not just in policy, but in mindset.

Replacing Risk With Health & Wellness

IntellectAbility’s motto, “Replacing Risk with Health & Wellness,” is both aspirational and practical. According to it, first, identify risk; second, prioritize it; and third, mitigate it. Afterwards, professionals must monitor continuously. When that cycle becomes part of everyday operations, outcomes improve. Stability improves. Confidence improves. Lives improve.

Looking Ahead

Looking ahead, the company’s work continues. It is advancing predictive modeling capabilities, strengthening system partnerships, and exploring how its framework can support additional at-risk populations beyond those with IDD. The principles of proactive risk identification apply wherever preventable decline exists. Craig believes that with the right tools, education, accountability, and commitment, IntellectAbility can change the trajectory of accepting preventable deaths as unavoidable. This approach drives the company every day.

“When we replace risk with health and wellness, we don’t just prevent tragedy, we create the opportunity for longer, fuller, and healthier lives.”

Craig Escudé, President

New Quality Improvement Program Provides Enhanced Education in the Care of Patients with Disabilities

New Quality Improvement Program Provides Enhanced Education in the Care of Patients with Disabilities

CLEARWATER, FL, UNITED STATES, September 29, 2025, a leading healthcare software and education company dedicated to improving health outcomes for people with intellectual and developmental disabilities (IDD), is proud to announce a new quality improvement (QI) offering through the American Board of Medical Specialties Portfolio Program™ (ABMS Portfolio Program).

 

ABMS is a nationally recognized not-for-profit organization serving the public and the medical profession by improving healthcare quality and establishing professional standards. The ABMS Portfolio Program recognizes physicians and physician assistants (PAs) for engaging in meaningful QI activities as part of their continuing certification.

Members of ABMS will now be able to participate in IntellectAbility’s new QI program, Improving Care for Patients with Intellectual and Developmental Disabilities (IDD). This program will employ IntellectAbility’s Curriculum in IDD Healthcare eLearn course, which consists of six modules that provide learners with pertinent, practical information that can be used immediately in their practices to improve outcomes, reduce suffering, and prevent unnecessary death in their patients with IDD.

Biases and gaps in healthcare education result in statistically higher mortality rates for disabled patients who suffer from treatable comorbidities, including aspiration, bowel obstruction, dehydration, seizures, and infection/sepsis. Education plays a vital role in improving proper diagnosis and appropriate healthcare plans, thus ensuring better care and overall health.

Established through the generous support of Elevance Health, the QI program is designed to raise awareness and build competencies among healthcare providers by offering person-centered, clinically relevant education that supports better care for people with IDD. Completing this program contributes to the ABMS Portfolio Program’s requirement that physicians and PAs earn Maintenance of Certification (MOC) credits.

“It’s well documented that most healthcare providers are not adequately trained to meet the unique healthcare needs of people with intellectual and developmental disabilities,” states Dr. Craig Escudé, President of IntellectAbility and IDD physician expert. “The Curriculum in IDD Healthcare is a proven eLearning program that enhances clinicians’ confidence and clinical skills in caring for this population. Now, the course offers even greater value by helping clinicians meet Maintenance of Certification requirements for most medical specialty boards. With a single course, clinicians can fulfill MOC obligations, earn continuing medical education (CME) credits, and strengthen their ability to deliver high-quality care to people with IDD.”

“IntellectAbility’s partnership with Elevance Health to improve health outcomes and quality of life for people with IDD is a groundbreaking collaboration that brings together clinical expertise, data-driven insights, and person-centered tools to support the often-complex healthcare needs of people/patients with IDD,” says Dr. Escudé. “We are deeply grateful for Elevance Health’s support in helping bring this program to life, ensuring more clinicians are equipped to meet the unique needs of patients with intellectual and developmental disabilities.”

As the newest ABMS Portfolio Program Sponsor, IntellectAbility joins a national community of esteemed medical professionals and health organizations dedicated to improving the quality of care. This includes leading hospitals, academic medical centers, medical associations, specialty societies, and government agencies.

Medical professionals interested in learning more about this program may visit IntellectAbility’s website to enroll.

How Technology Will Drive the $50 Billion Rural Health Transformation

How Technology Will Drive the $50 Billion Rural Health Transformation

A new federal program aims to modernize rural healthcare, with technology managers and digital tools playing a central role in its success.


By Alyx Arnett

The Centers for Medicare & Medicaid Services (CMS) has launched the Rural Health Transformation Program, a $50 billion investment designed to overhaul care delivery in underserved communities across the United States. The five-year initiative invites states to apply for funding to address systemic challenges, including limited resources, staffing shortages, and aging infrastructure, by developing innovative and sustainable healthcare solutions.

The program aims to empower states to build resilient systems that improve access and outcomes. “This program is a historic investment that will catalyze needed change in rural health systems and improve lives for generations to come,” said CMS Administrator Dr Mehmet Oz in the official announcement. “For too long, when it comes to health care access and infrastructure, we’ve left behind the backbone of America. That stops now with this program that will spark real change for rural health care.”

While the funding addresses a need, its success will depend on strategic implementation, particularly through the effective deployment of technology and the development of a workforce capable of leveraging it, according to Craig Escudé, MD, FAAFP, FAADM, FAAIDD, a family physician with over two decades of experience in rural and specialized healthcare. Escudé says the program’s potential lies in its ability to support technology-enabled solutions, targeted workforce training, and collaboration between clinical and technical teams.

 

Closing Care Gaps with Digital Tools

 

For rural providers, distance and resource limitations are persistent barriers to care. The Rural Health Transformation Program’s emphasis on technology funding is designed to address these issues. Escudé, a board-certified Fellow of the American Academy of Family Physicians, the American Academy of Developmental Medicine, the American Association on Intellectual and Developmental Disabilities, and president of IntellectAbility, believes that tools such as telehealth platforms, remote patient monitoring systems, and integrated electronic health records are essential for proactive care management. These technologies, he explains, can “help providers detect emerging issues early and manage chronic conditions more effectively.”

This is especially important for vulnerable populations, such as individuals with intellectual and developmental disabilities, who often require specialized care that is scarce in rural areas, says Escudé, noting that digital health assessments and decision-support tools, such as the Health Risk Screening Tool, can help clinicians “identify subtle signs of illness that might otherwise be missed.”

By investing in data-sharing systems and population health analytics, he adds, communities can track health trends and develop targeted preventive programs, making high-quality care more accessible.

 

Building a Tech-Savvy Workforce

 

New technology is only effective if the workforce is prepared to use it. Acknowledging this, the Rural Health Transformation Program supports workforce development, a component Escudé sees as key for building long-term capacity. He argues that rural providers require both clinical and technical expertise to deliver coordinated, high-quality care. This necessitates a focus on practical, accessible training.

“The most critical workforce development efforts include cross-training clinicians in the use of digital health tools, telemedicine platforms, and electronic health records to enhance communication and efficiency,” Escudé says.

He also highlights the need for education in population health management and data interpretation, suggesting that online courses, such as the Curriculum in IDD Healthcare, and virtual mentoring can make advanced training feasible even in remote regions. This strategy ensures that clinicians are not only equipped with modern tools but also possess the skills to turn data into actionable clinical insights, he says.

 

Collaboration as the Cornerstone

 

Ultimately, translating financial investment into tangible health improvements will require collaboration among clinicians, technology managers, and community health leaders. Escudé emphasizes that this partnership is essential for aligning technology implementation with the practical needs of providers and patients.

“When these groups collaborate, they can ensure that tools such as telehealth platforms, data systems, and remote monitoring devices are practical and effectively utilized,” he says.

In this model, clinicians guide the design of technology around patient care workflows, while technology managers ensure that systems are reliable, secure, and user-friendly. This teamwork fosters a more integrated, person-centered system that builds trust and improves continuity of care, he says. The true success of the Rural Health Transformation Program, Escudé believes, will be measured not just in dollars spent but also in outcomes achieved, including “the effective use of telehealth and data systems” to build a resilient and equitable rural health system.

 

This article originally appeared on 24×7 at: How Technology Will Drive the $50 Billion Rural Health Transformation | 24×7 | Leading Resource for Healthcare Technology Management Professionals

IntellectAbility Driving Meaningful Change in Care for At-Risk Population

IntellectAbility Driving Meaningful Change in Care for At-Risk Population

IntellectAbility is advancing proactive healthcare in the intellectual and developmental disabilities (IDD) field through its powerful Health Risk Screening Tool (HRST®). The HIPAA-compliant, web-based instrument enables service providers and caregivers to identify early signs of health destabilization in at-risk populations, facilitating timely intervention and improved outcomes.

“No other tool combines the HRST’s reliability, clinical validation, and ability to revolutionize health risk detection and care planning,” says Dr. Craig Escudé, president.

HRST is the only third-party validated screening solution designed specifically for people with IDD. Backed by decades of field experience and trusted expertise, it has supported the proactive care of more than 130,000 people across 26 states in the U.S.

For people with IDD, the tool drives swift, life-saving interventions that avert unnecesary suffering, hospitalizations, and even fatalities. Supporters and caregivers can anticipate needs, rather than reacting to crises, and implement preventative measures to enhance quality of life. Healthcare facilities and health plans benefit from fewer emergency visits and reduced strain on resources, which improves efficiency and lowers overall healthcare costs.

The origin of the HRST dates back to the early 1990s, when Karen Green McGowan, a nurse at Glenwood State Hospital School, confronted the neglect, overcrowding, and high mortality faced by people with IDD. She dedicated herself to providing supporters and caregivers with the knowledge and tools to recognize and address overlooked health risks. While consulting on the safe transition of 240 individuals from institutions to community settings, she was asked to develop a method to determine who required specialized care. This work led to the creation of the HRST.

The tool utilizes a structured questionnaire with straightforward yes-or-no answers to assess 22 potential areas of concern. They cover issues such as swallowing and choking, aspiration, seizures, medication side effects, adverse behaviors, and mobility challenges to capture a comprehensive picture of an individual’s health risks.

After the screening is completed, the HRST analyzes the responses to pinpoint the most urgent risks for that person. It then produces a person-specific action plan that recommends next steps such as follow-up medical care, specialized services, or focused training for caregivers.

The screening can be completed quickly by any supporter, including family members and non-clinical staff, without extensive medical training.

Real-world results illustrate its impact. One individual struggled with severe behavioral issues that prompted plans for psychiatric hospitalization. IntellectAbility’s HRST pinpointed undiagnosed dental pain as the likely cause. After a dental exam revealed multiple abscesses and treatment was provided, the behaviors disappeared, avoiding unnecessary medication and a costly hospital stay.

In another case, a person endured recurring bowel obstructions from severe constipation, a dangerous and painful condition. The HRST directed supporters to preventive steps, including targeted dietary changes, improved posture, and vigilant monitoring. The proactive guidance replaced crisis treatment with consistent care, sharply reducing emergencies and restoring comfort and health.

IntellectAbility complements the tool, serving as an official provider of NADSP-accredited education for direct support professionals and frontline supervisors. E-learning courses and person-centered thinking training for agencies, support staff, and physicians help them recognize early health risks and apply practical, individualized care and support strategies.

Serving a growing community nationwide, IntellectAbility empowers supporters to proactively safeguard the health and well-being of people with IDDand other at-risk populations, including those who are agingsetting a new standard for person-centered support.

This article originally appeared on Healthcare Tech Outlook at https://www.healthcaretechoutlook.com/intellectability.

New Federal Rural Health Transformation Program Could Improve Outcomes for People with Disabilities

New Federal Rural Health Transformation Program Could Improve Outcomes for People with Disabilities

The Rural Health Transformation Program aims to expand access, strengthen workforces, and bring innovation to underserved communities.

CLEARWATER, FL, UNITED STATES, October 14, 2025 – The recently announced Rural Health Transformation (RHT) Program, authorized by the One Big Beautiful Bill Act (Section 71401 of Public Law 119-21), will invest $50 billion from fiscal year 2026 through 2030 to strengthen healthcare delivery in rural communities across the United States.

The initiative emphasizes health equity, access, innovation, and sustainability. These goals carry significant promise for people with intellectual and developmental disabilities (IDD), who are often disproportionately affected by health inequities in rural areas.

The RHT Program aims to reduce longstanding disparities by expanding access to prevention and chronic disease management, improving population health strategies, and bolstering workforce recruitment and training. For people with IDD, who often face higher risks of undetected health concerns, limited provider expertise, and geographic isolation, this program could be a new lifeline.

“Far too often, rural communities lack the trained clinicians and resources needed to identify and address the unique health risks faced by people with disabilities,” says Dr. Craig Escudé, a physician specializing in IDD and President of IntellectAbility®. “This program represents an opportunity to help thousands of people with IDD by employing tools such as the Health Risk Screening Tool (HRST®)—which enables early risk identification and data-driven planning—and eLearning for rural health providers, which strengthens provider skills through accessible, scalable training.”

Among the RHT Program’s approved uses of funds are providing training and technical assistance for the development and adoption of technology-enabled solutions that improve care delivery in rural healthcare settings.

Experts highlight that evidence-based tools, such as the HRST, alongside scalable training initiatives, align directly with the program’s CMS-approved funding categories. These categories include prevention, population health improvement, technology integration, and workforce development. Such approaches could play a crucial role in supporting earlier detection of health risks, improving care delivery, and expanding professional expertise in underserved areas.

By prioritizing equity and innovation, the RHT Program underscores the importance of ensuring that all rural residents, including people with disabilities, benefit from healthier, more resilient care systems.

About the Health Risk Screening Tool (HRST)
The Health Risk Screening Tool (HRST) is the leading screening tool for intellectual and developmental disability (IDD) risk management and support. It is a HIPAA-compliant, web-based rating instrument developed to detect health destabilization in at-risk populations and ensure that proper care and support are provided at all times to avoid unnecessary suffering and death. It is a validated and proven predictor of mortality and is currently used in 26 states, actively monitoring more than 130,000 people.

Rising Diabetes Rates in Americans with Disabilities Fuel Demand for Improvements in Care

Rising Diabetes Rates in Americans with Disabilities Fuel Demand for Improvements in Care

 

“Blood glucose monitoring in people with IDD is often complicated by sensory sensitivities, communication barriers, and the need for consistent, trained supporters”

— Dr. Craig Escudé

 

CLEARWATER, FL, UNITED STATES, September 17, 2025 — As diabetes cases continue to rise nationwide, people with intellectual and developmental disabilities (IDD) are suffering disproportionately, facing significantly higher mortality rates. Advancements in patient monitoring provide improvements in overall health and quality of life.

The World Health Organization (WHO) reports that adults living with diabetes recently surpassed 800 million worldwide, more than quadrupling since 1990.

According to estimates released by the U.S. Centers for Disease Control and Prevention (CDC), 38.4 million, or 11.6% of Americans have diabetes nationwide. Even higher rates are found in people with disabilities, with an estimated 16.2%, or about 1 in 6 disabled Americans, currently diagnosed with diabetes throughout the U.S., compared to 1 in 14 people without disabilities.

For people with IDD, physical and cognitive challenges often result in higher instances of inactivity, especially for those with mobility issues. Inactivity can increase the likelihood of obesity, high blood pressure, and high cholesterol– comorbidities that are all linked with the development of Type 2 diabetes.

“People with IDD often face compounded barriers to maintaining adequate physical activity, including motor coordination challenges, co-occurring medical conditions, limited access to adaptive programs, and insufficient supports. Without targeted interventions, these factors contribute to sedentary lifestyles and increased risk of secondary health complications,” states Dr. Craig Escudé, family physician, IDD specialist, and President of IntellectAbility.

Poor dietary choices and a lack of proper nutrition can also contribute to statistically higher instances of diabetes. People with IDD often rely on familiar routines, including the food that they eat. Food can be rejected if its not a particular texture, flavor, or color, or isn’t what they are used to eating. Developmental disabilities can also create limitations in what food can be eaten and how it is consumed. This can make it increasingly difficult to change dietary behaviors and improve nutrition.

People with IDD also face disproportionately higher instances of financial insecurity due to statistically lower levels of employment. Lower socioeconomic status has been found to lead to diets that consist mainly of processed foods, which are traditionally high in sugar and lack the vital nutrients required to maintain a well-balanced diet and reduce excess weight.

Once diagnosed with diabetes, consistent blood glucose monitoring and insulin administration are typically required. These constant needle pricks can cause distress for people with IDD.

“Blood glucose monitoring in people with IDD is often complicated by sensory sensitivities, communication barriers, and the need for consistent, trained supporters,” states Dr. Escudé.

The early detection of health instability is essential for improving the health of patients with diabetes. In people with IDD, these signs can include:

* Sudden behavior or mood changes
* Increased thirst or urination
* Unexplained fatigue or weakness
* Unsteady gait or increased falls
* Slow-healing wounds or skin changes

IntellectAbility® developed the Health Risk Screening Tool (HRST®) to aid healthcare providers and support staff in identifying early warning signs, assessing and prioritizing health needs, and developing individualized care plans.

“The (HRST) is vital in identifying health risks and improving health outcomes for people with IDD by identifying subtle health changes early, guiding proactive interventions, and helping prevent hospitalizations, emergency department visits, and life-threatening complications.”

Battling New Medicaid Cuts and Rising Healthcare Costs: Early Identification of Health Destabilization is Key

Battling New Medicaid Cuts and Rising Healthcare Costs: Early Identification of Health Destabilization is Key

Improvements in education and health-tracking software promise to reduce healthcare costs in the face of budget cuts.

CLEARWATER, FL, UNITED STATES, August 18, 2025 — With the recent approval of nearly $1 trillion in Medicaid cuts over the next 10 years, healthcare providers nationwide are seeking new ways to optimize patient health in the wake of dwindling budgets. New developments in health education and technology are helping to decrease healthcare costs while improving the health of patients with disabilities.

Among those who stand to be most affected by Medicaid cuts are people with intellectual and developmental disabilities (IDD). People with IDD rely heavily on Medicaid to cover home and community-based services (HCBS). HCBS Medicaid waivers provide a range of services and supports to enable people with IDD to live more independent lives. Some examples include personal care assistance, help with household chores and meal preparation, modifications to homes for accessibility, and transportation.

About 4.5 million people receive Medicaid-covered home services annually. While these programs are important for the overall health and well-being of people with IDD, the role that HCBS providers play in keeping down healthcare costs is often overlooked. HCBS support staff, like direct support professionals (DSPs) and case managers, are the first line of defense against health destabilization. As health conditions worsen, the high cost of ER visits and emergency medical procedures puts an increased burden on shrinking Medicaid funds.

Misdiagnoses can result in inaccurate treatments, causing more harm than good. Diagnostic overshadowing, or the attribution of symptoms to an existing diagnosis rather than a potential treatable, underlying condition, has also led to increased health risks and costs for people with IDD. Additionally, misconceptions about the quality of life of people with IDD combined with a lack of education in the specialized care of these individuals often lead to misdiagnosis and, in turn, improper treatment plans.

“Most health professionals are not adequately trained to address the unique healthcare needs of people with intellectual and developmental disabilities (IDD). Comprehensive training is essential to recognize when behaviors may signal underlying, treatable medical conditions; to understand the most common and preventable causes of illness and death; and to avoid the serious complications that can result from overprescribing unnecessary behavioral medications,” says Dr. Craig Escudé, physician specializing in IDD and President of IntellectAbility. “Educating healthcare providers promotes more targeted interventions that can lead to more cost-effective healthcare.”

IntellectAbility provides tools and training to aid managed care organizations (MCOs), healthcare workers, direct support professionals, and case managers in recognizing the unique presentations of common medical conditions that can lead to death, including aspiration, constipation, bowel obstruction, seizures, dehydration, and sepsis. Early detection of these conditions is key to reducing healthcare costs and enrollment in Medicaid-funded programs.

Some common warning signs of health issues destabilization include:

* A change in baseline behavior is often an early indicator of an underlying medical issue.

* Agitation around mealtimes may signal nausea, potentially as a side effect of medication.

* Heartburn or reflux can manifest as aggressive behavior before, during, or after meals.

* Symptoms of anxiety may actually reflect chest pain or low blood glucose levels.

* Withdrawal and decreased appetite could be signs of constipation.

“Technology such as the Health Risk Screening Tool (HRST) plays a vital role in improving the early detection of health destabilization in people with intellectual and developmental disabilities,” states Dr. Escudé. “By systematically identifying risk factors and subtle changes in health status, tools like the HRST empower caregivers and clinicians to intervene earlier, often preventing more serious and costly medical complications down the line. This proactive approach not only improves health outcomes and quality of life, but also significantly reduces avoidable hospitalizations and healthcare costs.”

Additional information about how states and HCBS providers can optimize healthcare expenditures can be obtained by downloading IntellectAbility’s new white paper on the subject: “Optimizing HCBS & Healthcare Spending for People with IDD During Medicaid Cuts”.

New Study Finds That Specialized Care Reduces ER Visits for Americans with Intellectual and Developmental Disabilities

New Study Finds That Specialized Care Reduces ER Visits for Americans with Intellectual and Developmental Disabilities

Enhanced provider education and training lead to reduced healthcare costs and better health outcomes for disabled Americans.

“Specialized training equips providers with the knowledge and confidence they need to recognize and address the unique health needs of people with intellectual and developmental disabilities”

— Dr. Craig Escudé, President of IntellectAbility

CLEARWATER, FL, UNITED STATES, June 25, 2025 /EINPresswire.com/ — Emergency Room (ER) visitation rates are significantly more frequent among adults with intellectual and developmental disabilities (IDD). A new study, published by the University of Florida College of Medicine, found that enrolling adults with disabilities in specialized care programs significantly decreased the need for emergency care services.

Published on April 3, 2025, the study tracks how specialized care programs, specifically the Program for Adults With Intellectual and Developmental Disabilities (PAIDD), impact the rate of ER visits for people with IDD. Those enrolled in PAIDD saw a statistically significant decrease in ER visits compared to adults with IDD who received care outside the program.

People with IDD are at higher risk of severe health complications due to comorbidities, including aspiration, bowel obstruction, seizures, dehydration, and sepsis. Disabled adults suffering from these conditions face disproportionately higher mortality rates compared to those without disabilities.

“When adults with intellectual and developmental disabilities have access to clinicians trained in IDD-related health risk identification and mitigation, health issues are identified and treated early, helping to prevent serious complications and significantly reducing the need for emergency room visits,” said Dr. Craig Escudé, President of IntellectAbility and a family physician with extensive experience in providing healthcare for people with IDD.

IntellectAbility provides tools and training to agencies, governmental entities, and supporters of people with intellectual and developmental disabilities to foster early recognition and mitigation of health risks, thereby improving health and wellness.

States are increasingly turning to managed care organizations (MCOs) to improve both the cost and quality of care. MCOs work with a network of providers to manage their members’ long-term healthcare services and supports. With rising enrollment by individuals with IDD, MCOs are recognizing the need for enhanced provider education to support improved health outcomes and quality of life. IntellectAbility is partnering with leading MCOs to deliver specialized training that equips providers to identify early signs of health destabilization.

According to a survey conducted by Harvard Medical School, only 40.7% of physicians rated themselves as feeling “very confident” in their ability to provide equitable care to patients with disabilities], and just 56.5% strongly agreed [they welcomed patients with disabilities into their practices. In response to this gap, IntellectAbility has collaborated with managed care organizations to support provider training. Among them are health plans affiliated with Elevance Health, which have taken proactive steps to elevate provider education and improve care quality. IntellectAbility values the opportunity to support organizations like Elevance Health in their efforts to strengthen care for individuals with intellectual and developmental disabilities.

“Specialized training equips providers with the knowledge and confidence they need to recognize and address the unique health needs of people with intellectual and developmental disabilities—improving outcomes, building trust, and ultimately saving lives,” states Dr. Escudé. “When Managed Care Organizations, like Elevance Health affiliated plans, invest in training their provider networks, they become essential partners in reducing avoidable emergency room visits and promoting proactive, person-centered care.”

IntellectAbility provides tools and training to agencies, governmental entities, and supporters of people with intellectual and developmental disabilities to foster early recognition and mitigation of health risks, thereby improving health and wellness. One such tool is the Health Risk Screening Tool (HRST), of which they are the sole developer, producer, and distributor. The web-based HRST is the most widely used and validated health risk screening instrument for people with intellectual and developmental disabilities. IntellectAbility also provides numerous health-related and person-centered service training for supporters of people with IDD. With an unrelenting focus, IntellectAbility works to fulfill its mission of improving health and quality of life for people with intellectual and developmental disabilities and other at-risk populations.

DDNA and IntellectAbility Announce New Karen Green McGowan Memorial Scholarship Fund

DDNA and IntellectAbility Announce New Karen Green McGowan Memorial Scholarship Fund

New Scholarship benefits current and future nurses specializing in the care of patients with intellectual and developmental disabilities.

 

“This scholarship will honor our founder’s legacy by empowering future generations of nurses who want to dedicate their lives to improving the healthcare of people with IDD.”
— Dr. Craig Escudé, President of IntellectAbility
 

CLEARWATER, FL, UNITED STATES, June 25, 2025 /EINPresswire.com/ — The Developmental Disabilities Nurses Association (DDNA) recently announced the establishment of the Karen Green McGowan Memorial Scholarship. Honoring the former President of DDNA and Founder of IntellectAbility, the scholarship aims to support education for nurses and future nurses who specialize in the care of patients with intellectual and developmental disabilities (IDD).

Karen Green McGowan passed away on April 2, 2025, at the age of 84. A lifetime advocate of people with disabilities, she was a visionary whose work transformed the field of IDD supports and services. McGowan was central to the establishment of the DDNA and instrumental in creating the initial certification process for the specialty of developmental disabilities nursing.

“This scholarship was created in recognition of Karen Green McGowan’s extraordinary impact on intellectual and developmental disabilities nursing,” said S. Diane Moore, Executive Director of DDNA. “We are honored to celebrate Karen’s memory through this scholarship. Her legacy will live on through the lives of the nurses and future nurses who benefit from this support.”

McGowan began her career as a nurse in 1962 at Mailstrom Air Force Base. After moving back to her home state of Iowa in 1965, she accepted a position at Glenwood State Hospital School, an institution for people with severe intellectual disabilities. Early on, McGowan saw an urgent need for better education and training. She authored numerous training manuals for clinicians on the physical and nutritional management of people with disabilities, filling a critical gap in available resources.

In 1992, while consulting on the transition of 240 people from institutions to community settings, McGowan was asked to develop a way to determine who required specialized care. She assembled a team of innovative nurses to create an effective solution using key health indicators such as eating ability and mobility. The result was the Health Risk Screening Tool (HRST), a 22-item screening tool that evaluates risks in critical areas.

As demand for the HRST and educational resources grew, McGowan founded IntellectAbility, formerly known as Health Risk Screening, Inc., an organization dedicated to equipping supporters, clinicians, and administrators with tools and training to improve health outcomes for people with disabilities.

Central to the organization’s approach was McGowan’s commitment to Person-Centered Planning and Person-Centered Thinking, which emphasize the importance of tailoring support to each person’s unique needs, preferences, and aspirations. Now an industry leader, IntellectAbility’s HRST has transformed how health risks are identified and managed, ensuring people with IDD receive the care and support they need to thrive.

“We are honored to donate $10,000 to the establishment of the Karen Green McGowan Memorial Scholarship,” said Dr. Craig Escudé, President of IntellectAbility. “This scholarship will honor our founder’s legacy by empowering future generations of nurses who want to dedicate their lives to improving the healthcare of people with intellectual and developmental disabilities.”

The Karen Green McGowan Memorial Scholarship will become available in 2026 to student nurses with an interest in IDD nursing and for practicing nurses who are striving to further their education in the specialty. Donations to support this scholarship fund may be made directly through the Developmental Disabilities Nurses Association.

The Developmental Disabilities Nurses Association (DDNA) is a 501(c)(3) not-for-profit nursing specialty organization that is committed to advocacy, education, and support for nurses who provide services to persons with developmental disabilities (DD). Established in 1992, DDNA’s goal is to foster the growth of nursing knowledge and expertise about optimal care of persons with DD, thereby improving their care, services, and quality of life. Through its efforts, DDNA offers members the opportunity to network with other DD nurses and explore common issues, helping to identify practical solutions to some of today’s most challenging concerns. DDNA works tirelessly to advocate for DD nursing at every opportunity, collaborating with other professional organizations relating to the field of DD and representing its members among the greater nursing and healthcare communities.

IntellectAbility provides tools and training to agencies, governmental entities, and supporters of people with intellectual and developmental disabilities to foster early recognition and mitigation of health risks, thereby improving health and wellness. One such tool is the Health Risk Screening Tool (HRST), of which they are the sole developer, producer, and distributor. The web-based HRST is the most widely used and validated health risk screening instrument for people with intellectual and developmental disabilities. IntellectAbility also provides numerous health-related and person-centered service training for supporters of people with IDD. With an unrelenting focus, IntellectAbility works to fulfill its mission of improving health and quality of life for people with intellectual and developmental disabilities and other at-risk populations. 

Karen Green McGowan, Founder of IntellectAbility, Passes Away Leaving Behind Legacy of Advocacy and Education

Karen Green McGowan, Founder of IntellectAbility, Passes Away Leaving Behind Legacy of Advocacy and EducationKaren Green McGowan

IntellectAbility continues Karen McGowan’s legacy of improving the health and well-being of people with intellectual and developmental disabilities.
She was a friend, a mentor, and the heart of our mission. Her legacy lives on in the work we do, and we’ll carry it forward with the same heart and purpose that guided her every day.”
— Dr. Craig Escudé, President of IntellectAbility
CLEARWATER, FL, UNITED STATES, April 9, 2025 /EINPresswire.com/ — Karen Green McGowan, Founder of IntellectAbility, former President of the Developmental Disabilities Nurses Association, and lifetime advocate for people with intellectual and developmental disabilities (IDD), passed away on April 2, 2025, at the age of 84. McGowan was a visionary whose work transformed the field of IDD supports and services. Karen McGowan began her career in healthcare in 1962 as a labor and delivery nurse at Mailstrom Air Force Base in Montana. She helped deliver hundreds of babies at Mailstrom before marrying in 1965 and moving back to her home state of Iowa. Soon after, she accepted a position at Glenwood State Hospital School, an institution for people with severe intellectual disabilities. McGowan’s mentors had cautioned her about working at Glenwood, where overcrowding, neglect, and extremely high mortality rates were the norm. Their concerns reflected the stark reality of the time. People with disabilities were often devalued, and the field was seen as a professional dead end. But McGowan saw it as an opportunity to create positive change and make a difference in patients’ lives. Recognizing the need for better education and training in the field, Karen became deeply invested in equipping others with the knowledge to provide quality care. She authored numerous training manuals for clinicians on the physical and nutritional management of people with disabilities, filling a critical gap in available resources. Driven by her passion for education, McGowan became an independent clinical nurse consultant in 1977. As a consultant, Karen provided technical assistance to more than 40 states and nine Canadian provinces. She also consulted internationally with Disability Rights International, assessing care conditions in Romania, Serbia, the Republic of Georgia, Mexico, and Ukraine. In 1992, while consulting on the transition of 240 people from institutions to community settings, Karen was asked to develop a way to determine which of them required specialized care. She assembled a team of innovative nurses to create an effective solution using key health indicators such as eating ability and mobility. The result was the Health Risk Screening Tool (HRST), a 22-item screening tool that evaluates risks in critical areas. As demand for the HRST and educational resources grew, Karen founded IntellectAbility, formerly known as Health Risk Screening, Inc., an organization dedicated to equipping supporters, clinicians, and administrators with tools and training to improve health outcomes for people with disabilities. Central to the organization’s approach was Karen’s commitment to Person-Centered Planning and Person-Centered Thinking, which emphasize the importance of tailoring support to each person’s unique needs, preferences, and aspirations. Now an industry leader, the HRST has transformed how health risks are identified and managed, ensuring people with IDD receive the care and support they need to thrive. In line with her commitment to reducing risk, Karen played a key role in popularizing the term Fatal Five – a phrase used to highlight the most preventable causes of death among people with IDD. Building on the previously recognized Fatal Four, she added sepsis and later gastroesophageal reflux disease (GERD) to the original list, which included aspiration, constipation, dehydration, and seizures. By equipping supporters with critical knowledge to recognize and respond to these risks, Karen helped establish terminology and awareness that continue to shape best practices in the IDD field today. “We are deeply saddened by the passing of our founder. Her vision, compassion, and unwavering dedication to people with intellectual and developmental disabilities built the foundation of IntellectAbility,” said Dr. Craig Escudé, President of IntellectAbility. “Karen was more than a leader — she was a friend, a mentor, and the heart of our mission. Her legacy lives on in the work we do, and we’ll carry it forward with the same heart and purpose that guided her every day.” IntellectAbility provides tools and training to agencies, governmental entities, and supporters of people with intellectual and developmental disabilities to foster early recognition and mitigation of health risks, thereby improving health and wellness. One such tool is the Health Risk Screening Tool (HRST), of which they are the sole developer, producer, and distributor. The web-based HRST is the most widely used and validated health risk screening instrument for people with intellectual and developmental disabilities. IntellectAbility also provides numerous health-related and person-centered service training for supporters of people with IDD. With an unrelenting focus, IntellectAbility works to fulfill its mission of improving health and quality of life for people with intellectual and developmental disabilities and other at-risk populations. For more information, visit www.ReplacingRisk.com

Daniel Mutter MutterWorks +1 305-926-1792 daniel@mutterworks.com