Pennsylvania ODP: What Is Changing in Supports Coordination Standards? (And What It Means for Your Team)

Pennsylvania ODP: What Is Changing in Supports Coordination Standards? (And What It Means for Your Team)

 

Pennsylvania is entering a major shift in how Supports Coordination services are evaluated, and for many providers, the biggest challenge is understanding what’s actually happening.

The Office of Developmental Programs (ODP) has introduced performance-based contracting standards, fundamentally changing how services are measured, monitored, and held accountable.

The impact of these changes is:

How your team works day to day is now directly tied to performance.

This guide breaks it all down, including what’s changing, what it means, and how to prepare.

Introduction to Supports Coordination

 

Supports Coordination is at the heart of Person-Centered Thinking, serving as the bridge between people and the services that empower them to lead fulfilling lives. By focusing on each person’s unique needs, preferences, and values, Supports Coordination enables people to exercise positive control over their own lives and make informed choices about their support. In the realm of mental health services administration and developmental programs, this approach is essential for creating environments where people feel heard, respected, and supported.

Person-Centered Thinking focuses on practical skills that help organizations build a culture rooted in empathy and understanding. When Supports Coordination is guided by these principles, it naturally leads to more effective, trauma-informed support. This means recognizing the impact of trauma on a person’s health and well-being, as well as ensuring that every interaction and service is delivered with sensitivity and respect. Ultimately, Supports Coordination is about fostering a culture where every person’s life, choices, and experiences are valued and supported.

Here are some common questions Pennsylvania Supports Coordinators might have:

 

What is Pennsylvania changing?

 

At the highest level, Pennsylvania is shifting Supports Coordination from a compliance-driven system to a performance-driven system.

That means agencies won’t just be evaluated on whether tasks are completed, but on how well they are completed and the outcomes they produce.

These new standards are part of ODP’s move toward performance-based contracting, which begins implementation in 2026. Organizations will need to update their procedures to align with the new performance standards, ensuring that trauma-informed support and person-centered practices are embedded in their daily operations.

Instead of checking boxes, Supports Coordination Organizations (SCOs) will now be measured against specific, data-driven performance standards.

 

What are the new performance standards focused on?

 

The new standards are organized around four major areas, providing a clear structure for organizations to follow as they enhance their services:

  • Sustainability – Ensuring people and families have access to appropriate services and options
  • Workforce – Strengthening staff competency and stability
  • Responsiveness – Improving access, communication, and satisfaction
  • Clinical Capacity – Supporting people with more complex medical and behavioral needs

To meet these standards, organizations will need to focus on developing new competencies and frameworks, particularly in trauma-informed support and person-centered practices.

These aren’t abstract goals. Each area includes measurable requirements that organizations must meet to remain compliant.

 

What does “performance-based” actually mean in practice?

 

This is where things start to feel different for teams on the ground.

Under the new model:

  • Data will be pulled from multiple systems (claims, surveys, incident data, health screenings, etc.)
  • Performance will be monitored continuously
  • Organizations must meet defined benchmarks or show measurable progress
  • Failure to meet standards can result in corrective action

In other words, performance monitoring will be ongoing and visible. When Person-Centered Thinking skills are taught, service plans are more likely to be acted upon effectively.

Training in Person-Centered Thinking equips staff to see people differently and act on what they learn, improving service delivery.  It also underscores the importance of investing in comprehensive training for support staff.

 

What will change specifically for Supports Coordinators?

 

For Supports Coordinators, this shift shows up in everyday work.

Expect increased expectations around:

  • Building truly person-centered plans that focus on supporting each person’s ability to lead a fulfilling, independent life
  • Responding to people with complex needs more effectively
  • Demonstrating timely communication and follow-through
  • Supporting measurable outcomes

For example, standards now include requirements around:

  • Timelines for service initiation
  • Frequency and quality of monitoring
  • Use of data to inform decision-making
  • Demonstrated progress in outcomes like employment and community inclusion

 

Why is Pennsylvania making this change?

 

This shift is rooted in the larger goal of

improving outcomes for people with intellectual and developmental disabilities (IDD).

The standards are aligned with Everyday Lives: Values in Action, which emphasizes:

  • Person-centered planning
  • Personal choice and control
  • Community inclusion, recognizing the vital role of communities and support networks in fostering resilience
  • Meaningful engagement in daily life

The intent is to move beyond process and focus on what actually improves someone’s life.

 

What does this mean for providers and agencies?

 

For providers, this is an operational shift.

Organizations will need to:

  • Focus on teaching staff the principles of Person-Centered Thinking and trauma-informed support
  • Ensure staff are trained beyond basic compliance
  • Strengthen clinical understanding across teams
  • Build systems to track and respond to performance data
  • Support consistent, high-quality decision-making

And most importantly:

They need to prepare before these expectations are enforced.

Because performance isn’t something you can fix overnight.

 

Implementation and Monitoring

 

Successfully implementing Person-Centered Thinking and trauma-informed practices into your organization demands a structured, ongoing commitment. Training sessions are a foundational element to equip staff with the skills and knowledge they need. These sessions help embed Person-Centered Thinking into daily routines, ensuring that every decision and action is guided by the principles of safety, autonomy, and respect.

Ongoing monitoring is equally important. By regularly evaluating practices and seeking feedback from persons supported and their families, organizations can identify strengths and areas for improvement. This continuous process helps maintain a culture of resilience and support, where relationships are prioritized, and every person’s needs are addressed. Through consistent implementation and monitoring, Supports Coordination becomes a living practice that adapts to the evolving needs of those it serves and remains focused on delivering meaningful, person-centered outcomes.

 

What kind of training is actually needed now?

 

This is where many organizations get stuck. To effectively support people, an organization should be interested in developing trauma-informed skills and fostering a culture of ongoing learning among staff.

The standards point clearly to two critical competency areas:

  1. Person-Centered Thinking

Teams must be able to:

  • Build plans that reflect what truly matters to the person, using Person-Centered Thinking skills to provide a structure for facilitating conversations and planning
  • Align services with personal goals and preferences
  • Move beyond documentation into meaningful outcomes, recognizing that teaching Person-Centered Thinking skills is essential for building effective, personalized plans
  1. Trauma-Informed Support

Staff must be able to:

  • Recognize how trauma impacts behavior, including identifying the signs and symptoms of trauma, such as difficulty in relationships, managing trauma-related symptoms, and substance abuse issues
  • Respond in ways that reduce escalation and facilitate support by creating supportive procedures and environments that empower people
  • Support people with greater consistency and understanding, shifting the focus from “What’s wrong with you?” to understanding behaviors as adaptive responses to trauma

These aren’t “nice to have” skills anymore.

They are now directly tied to performance expectations.

 

How does IntellectAbility fit into this?

 

At IntellectAbility, we’ve been working alongside organizations and providers across Pennsylvania through the use of the Health Risk Screening Tool (HRST®), helping teams better understand complex risk and work proactively to improve outcomes for people with IDD.

To support providers through this transition, we offer person-centered training designed to build these competencies:

Together, these trainings help teams move from understanding expectations to applying them in real-world scenarios. Providers and teams have expressed gratitude for the support and training received during these important transitions.

 

How do these courses work?

 

Both trainings are designed to fit into real-world provider environments:

  • Self-paced eLearning (accessible anytime)
  • Built for direct application
  • Designed to scale across entire teams
  • Focused on day-to-day decision-making and support
  • Enhance staff ability to implement person-centered plans effectively

This is meant to change how staff think and respond in real situations.

 

What should providers be doing right now?

 

If you’re in Pennsylvania, the most important step is simple:

Start preparing early.

Because:

  • Training takes time to roll out
  • Teams need time to apply what they learn
  • Behavior change doesn’t happen overnight
  • Developing the necessary skills and systems will require effort and ongoing commitment

Organizations that act now will be in a much stronger position to:

  • Meet new standards
  • Avoid corrective action
  • Deliver better outcomes

Final Thought: This Is Larger Than a Policy Change

 

Pennsylvania is raising the bar for quality, consistency, and outcomes.

The organizations that succeed will be those that understood the shift early and prepared for it intentionally. Belief in the ability of organizations and people to adapt and thrive under the new standards is essential for achieving lasting success.

 

Additional Resources:

Person-Centered Thinking Training vs. Trauma-Informed Support: Which eLearn Course Is Better for Mental Health Awareness?

Person-Centered Thinking Training vs. Trauma-Informed Support: Which eLearn Course Is Better for Mental Health Awareness?

 

IntellectAbility’s Person-Centered Thinking Training: Supporting People with IDD eLearn course and Trauma-Informed Support eLearn course both impact mental health outcomes, staff competency levels, and support quality for people with intellectual and developmental disabilities. The right course depends on your organization’s current needs, staff experience, and the specific mental health challenges you’re addressing during Mental Health Awareness Month.

Below is a practical comparison of these two IntellectAbility eLearn courses for mental health awareness.

 

Person-Centered Thinking vs Trauma-Informed Support: Key Differences

 

The main difference comes down to prevention and empowerment versus recognition and healing.

  • Person-Centered Thinking focuses on personal choice, self-determination, and empowering decision-making for people with intellectual and developmental disabilities.
  • Trauma-Informed Support addresses recognizing, understanding, and responding to trauma’s impact on mental health and behavior.

Both courses enhance mental health awareness, but through different approaches. Person-centered Thinking skills build a mindset focused on improving the mental health of those supported by enabling autonomy and dignity. Trauma-informed support provides tools to recognize trauma symptoms, prevent re-traumatization, and support healing for people who have experienced pain and suffering.

The training approaches differ significantly: one emphasizes empowerment, while the other addresses trauma responses directly.

 

Target Audience and Participant Requirements

 

Staff roles and experience levels determine which course provides the most immediate value for mental health support.

Person-Centered Thinking Training Participants

Person-Centered Thinking Training serves as foundational education for anyone supporting people with developmental disabilities. Ideal participants include:

  • Direct support professionals working with people with IDD who want to enhance choice and self-advocacy
  • Case managers and service coordinators developing person-centered plans and goals
  • New staff members needing foundational skills in respectful, empowering support approaches
  • Organizations transitioning from institutional or system-centered models toward more personalized, choice-driven supports

This training requires no prior specialized knowledge. The 9-hour self-paced eLearn training provides comprehensive development of Person-Centered Thinking skills.

 

Trauma-Informed Support Training Participants

Trauma-Informed Support is ideal for those already working directly with people who have complex presentations or challenging behaviors. Best suited for:

  • Experienced support staff encountering behaviors that may stem from trauma rather than intentional choices
  • Clinical professionals working with people who have histories of abuse, neglect, or medical trauma
  • Supervisors and managers needing to understand trauma’s impact on both clients’ and staff’s mental well-being
  • Teams supporting people transitioning from institutional settings where trauma exposure is common

Some familiarity with respectful support practices will help participants apply trauma recognition skills more effectively.

 

Mental Health Focus Areas and Applications

Each course addresses different types of mental health conditions and applies different intervention strategies.

 

Person-Centered Thinking Mental Health Applications

Person-Centered Thinking (PCT) training promotes mental wellness through increased autonomy, dignity, and positive control over daily life decisions. This approach impacts mental health by:

  • Addressing depression and anxiety that result from institutional approaches and lack of choice.
  • Building self-esteem and confidence through person-directed goal setting
  • Reducing behavioral problems by understanding what is Important TO and Important FOR each person
  • Creating consistency across staff turnover, reducing anxiety and identity confusion

Research supports that autonomy serves as one of the strongest protective factors against mental health problems. When people feel heard and respected, mental health conditions related to helplessness and disempowerment often improve.

 

Trauma-Informed Support Mental Health Applications

Trauma-Informed Support directly addresses trauma symptoms, including PTSD, anxiety, and depression, in people with intellectual disabilities.

This course provides mental health care tools for:

  • Recognizing trauma responses that manifest as behavioral disorders, regression, or emotional dysregulation
  • Understanding the biological basis of fight/flight/freeze/fawn responses
  • Avoiding “hidden land mines”—triggers from past trauma that cause distress
  • Building positive identity and supporting healing through relationship-based approaches

The training also addresses secondary trauma in support staff, helping providers maintain their own mental health while supporting people with complex histories.

 

Learning Methods and Course Structure

Course duration and delivery methods affect implementation across different types of organizations.

 

Person-Centered Thinking Course Structure

The newly launched Person-Centered Thinking eLearn, developed in collaboration with The Learning Community for Person-Centered Practices (TLCPCP) and Support Development Associates, delivers comprehensive person-centered training in a flexible, self-paced format. This modern learning experience includes:

  • Interactive modules focused on practical Person-Centered Thinking skills that can be applied immediately
  • Guided development of Person-Centered Descriptions (PCDs) that reflect what truly matters to each person
  • Scenario-based learning to build skills in balancing choice with safety in real-world situations
  • Structured content aligned with nationally recognized TLCPCP standards for person-centered practices

This eLearn provides an accessible, scalable way for organizations to build person-centered skills across teams, without the time constraints of traditional multi-day training.

 

Trauma-Informed Support Course Structure

The Trauma-Informed Support eLearn requires approximately 3 hours, delivered through 5 self-paced modules of roughly 30 minutes each. The structure includes:

  • Evidence-based content covering Big “T” and Little “t” trauma, PTSD manifestations, and healing modalities
  • Videos featuring Dr. Karyn Harvey alongside storytelling and case studies
  • Practical tools, including grief counseling approaches, positive psychology applications, and the Happiness Assessment
  • Knowledge checks and interactive scenarios for assessment

This format allows for flexible implementation with less effort in scheduling, making it accessible to organizations with limited resources or high staff turnover.

 

Implementation and Organizational Impact

 

Each course affects organizational culture and services differently.

Person-Centered Thinking Training creates foundational culture change. When implemented genuinely, PCT shifts how organizations approach support—from process-driven to person-driven. PCDs ensure that staff turnover doesn’t erase knowledge about what matters to each person. However, IntellectAbility cautions that PCT “loses power when it becomes transactional.” Organizations must commit to embedding the mindset, not just completing documentation.

Trauma-Informed Support requires supporting structures to realize its full benefits. Staff may need clinical supervision when applying healing tools. Organizations should review crisis protocols and consider how behavioral disorders are understood—shifting from punitive responses to supportive approaches. The emotional intensity of trauma content means staff may need peer support and resources for their own well-being.

Both approaches require leadership commitment. Mental health promotion through either course depends on organizational willingness to change practices, not just train people.

 

Mental Health Awareness Month Considerations

 

May is Mental Health Awareness Month, and it provides an opportunity to focus on both prevention and intervention.

  • Person-Centered Thinking aligns with mental health through empowerment and addressing the rights of people with disabilities to make their own choices
  • Trauma-Informed Support directly addresses mental health issues, recognizing that many mental health conditions in the IDD population stem from unrecognized trauma
  • Both courses contribute to reducing mental health disparities in the IDD community

Consider your organization’s current mental health initiatives when choosing. If your focus is on building resilience and preventing mental health problems before they develop, PCT provides foundational skills. If your aim is to improve mental health for people already experiencing distress or behavioral challenges rooted in past suffering, Trauma-Informed Support offers more targeted intervention tools.

 

Person-Centered Thinking vs Trauma-Informed Support: Which Course Should You Choose?

 

Choose Person-Centered Thinking Training if your organization needs foundational skills in respectful support, wants to increase personal choice and self-determination, and aims to prevent mental health conditions through empowerment. This course works best for new staff, organizations transitioning service models, and teams that need to build consistency in how they support people with intellectual and developmental disabilities.

Choose the Trauma-Informed Support eLearn course if your staff encounters challenging behaviors that may stem from trauma, needs recognition and response skills, and works with people who have experienced abuse, neglect, or significant adversity. The shorter format and self-paced delivery make it practical for immediate implementation.

Both courses enhance mental health awareness and can be taken together to provide comprehensive support. Organizations already practicing PCT will find that trauma-informed training builds naturally on that foundation—staff with Person-Centered Thinking skills are better positioned to apply trauma recognition and healing tools effectively.

Consider your organization’s current training portfolio, specific mental health challenges, and the people you support when making the decision. For many providers, the answer is both—foundational PCT work followed by specialized trauma awareness creates the strongest mental health support for people with developmental disabilities.

For many organizations, the most effective path forward is not choosing between these trainings—but implementing both. Person-Centered Thinking Training establishes the foundation for truly understanding what matters to each person, while Trauma-Informed Support equips staff with the insight and tools to recognize how past experiences may shape current needs, behaviors, and health outcomes.

Together, they create a more complete, responsive approach to support—one that is both deeply respectful and clinically informed. When combined, these trainings strengthen consistency across teams, improve communication, and lead to more proactive, personalized support for people with IDD.

 

Additional Resources:

The Health Risk Screening Tool (HRST®): Changing Outcomes for People with IDD by Detecting Risks Earlier

The Health Risk Screening Tool (HRST®): Changing Outcomes for People with IDD by Detecting Risks Earlier

 

Providers supporting people with intellectual and developmental disabilities (IDD) know that health issues rarely appear overnight. In many cases, subtle changes in behavior, energy, mobility, appetite, or routine may signal an emerging medical concern. These changes can be early indicators of illness or even risk of death if not addressed. When these early signs go unnoticed, what begins as a manageable issue can escalate into a behavioral crisis, an emergency department visit, or even a hospitalization.

For organizations responsible for supporting people with complex needs, identifying those early warning signs is one of the greatest challenges in delivering safe, effective support. Staff must interpret behavioral changes, communicate across interdisciplinary teams, and make decisions with limited clinical information. Without structured systems for identifying medical risk, opportunities for early intervention are often missed.

A recent pilot implementation of the Health Risk Screening Tool (HRST) within Threshold Residential Services provides insight into what can happen when those early warning signs are systematically identified and addressed. The HRST gives answers to key health risk questions and supports assessment across different age groups.

 

A Pilot Focused on Proactive Health Monitoring

 

Threshold Residential Services implemented HRST screenings for 51 adults with intellectual and developmental disabilities receiving residential services. The screenings were conducted between August 2024 and January 2025, and they were designed to identify potential health risks across multiple areas that commonly contribute to medical instability in people with IDD.

The HRST evaluates 22 areas of health risk, including factors such as eating and nutrition, bowel function, skin integrity, falls, aggression, and self-injury. Each screening generates a Health Care Level (HCL), which reflects a person’s overall level of medical risk and helps guide monitoring and care planning.

To evaluate the impact of HRST implementation, Threshold Residential Services compared outcomes from calendar year 2024, before HRST screening was implemented, with outcomes from calendar year 2025, following implementation.

The results were striking.

 

Fewer Behavioral Crises Following HRST Implementation

 

One of the most notable outcomes observed during the pilot was a significant reduction in behavior-related unusual incidents. In 2024, the organization recorded 55 behavior-related unusual incidents involving peer aggression, self-injurious behavior, or destruction of property. In 2025, following HRST implementation, that number dropped to 24.\

This represents a 56% reduction in behavior-related incidents.

Behavioral changes are often among the earliest indicators that something may be medically wrong. Pain, discomfort, infection, or other health concerns can manifest as agitation, withdrawal, or aggression, particularly when someone has difficulty communicating their symptoms.

By helping teams identify potential medical risks earlier, HRST screening supported more proactive responses to emerging health concerns. Addressing those concerns earlier likely prevented situations that might have otherwise escalated into behavioral crises. This highlights the importance of early intervention, ensuring everyone’s health and safety are prioritized.

 

Reductions in Hospitalizations and Emergency Department Visits

 

The pilot also demonstrated measurable reductions in acute medical utilization.

Unanticipated hospitalizations declined from 8 in 2024 to 4 in 2025, representing a 50% reduction. Using a conservative estimate of $30,000 per hospital admission, this reduction represents approximately $120,000 in avoided hospital costs.

Emergency department utilization also declined, from 7 visits in 2024 to 4 in 2025. Based on national cost estimates for emergency department visits among people with IDD, this reduction represents approximately $16,290 in avoided costs.

Combined, these reductions represent an estimated $136,290 in direct medical cost avoidance in a single year.

What’s more, these figures do not include additional operational costs associated with hospitalizations and emergency visits, such as staff supervision, transportation, documentation, care coordination, or disruptions to daily programming.

 

Health Care Access and Quality for People with IDD

 

Access to high-quality health care is a critical factor in determining health outcomes for people with intellectual and developmental disabilities. Unfortunately, many people with IDD encounter significant barriers, such as limited health insurance coverage, high out-of-pocket costs, and a shortage of providers trained to address their specific needs. These challenges can delay diagnosis and treatment, increasing the risk of health problems and certain diseases.

To deliver effective care, health care providers must consider each person’s intellectual functioning and adaptive behavior when developing individualized health care plans. Tailoring services to the unique needs of people with intellectual and developmental disabilities ensures that preventive measures, such as screening tests, are accessible and meaningful. Early identification of health risks allows for timely intervention, reducing the likelihood of more serious health issues in the future.

Family and supporter involvement is also essential. Parents and supporters often have valuable insights into the person’s needs, preferences, and daily routines, which can inform support planning and improve outcomes. By prioritizing accessible, person-centered health care and involving families and supporters in the process, providers can help people with IDD achieve better health and a higher quality of life.

 

Stability Matters for People with IDD

 

While cost savings are an important outcome for health systems and provider organizations, the impact of preventing medical crises extends far beyond financial measures.

Hospitalizations and emergency department visits can be particularly disruptive for people with IDD. Sudden changes in environment, unfamiliar medical settings, and interruptions in daily routines can increase stress and anxiety, sometimes leading to regression in skills or behavioral instability.

Preventing those destabilizing events helps people maintain their routines, remain engaged in their communities, and continue building independence.

For provider organizations, fewer crises also mean more stable environments for both the people they support and the staff delivering care. Expanding proactive health monitoring through a health risk screening tool can help more people access preventive support and ensure that those at risk receive timely interventions to address emerging health concerns.

 

A Shift from Crisis Response to Prevention

 

The findings from the Threshold Residential Services pilot reinforce an important shift taking place across disability services and healthcare systems more broadly: moving from reactive crisis management to proactive health monitoring.

Structured health risk screening tools like the HRST give teams a consistent framework for identifying medical concerns earlier and coordinating responses across interdisciplinary care teams. Rather than waiting until a crisis occurs, providers are better equipped to intervene before health conditions escalate.

While additional research across larger populations will further strengthen the evidence base, the results observed in this pilot highlight the potential impact of proactive health risk screening within residential service settings.

For organizations supporting people with intellectual and developmental disabilities, earlier detection of health risks can mean fewer crises, fewer hospitalizations, and better outcomes for the people they serve.

 

Additional Resources:

 

 

Dental Health for People with IDD: Why Prevention, Access, and Support Matter More Than Ever

Dental Health for People with IDD: Why Prevention, Access, and Support Matter More Than Ever

Oral health remains one of the most critical yet frequently overlooked components of overall well-being for individuals with intellectual and developmental disabilities (IDD). Present from birth, IDDs can profoundly shape an individual’s development across every stage of life. Though often treated as peripheral to broader medical care, dental health is in fact deeply intertwined with physical health outcomes, quality of life, and the prevention of avoidable hospitalizations. Because many IDD-associated conditions affect multiple body systems simultaneously, a truly comprehensive approach to care is essential.

During a recent IDD Perspectives webinar featuring Dr. Craig Escudé, President of IntellectAbility, and Dr. Allen Wong, a renowned global leader in special care dentistry, one message came through clearly: improving dental health for people with IDD requires a shift toward prevention, training, and person-centered support. Assistance in planning and managing support services is crucial, often involving the creation of a personalized support plan, called an ‘individual support plan,’ which is regularly reviewed to meet the person’s needs.

Introduction to Dental Health Challenges

People with intellectual and developmental disabilities (IDD) often encounter unique dental health challenges that can significantly affect their overall well-being. Intellectual disability, characterized by significant limitations in intellectual functioning and adaptive behavior, can make it more difficult for individuals to maintain good oral health routines. Developmental disabilities—a broader category that includes lifelong conditions affecting physical, learning, language, or behavior—can also impact dental health in various ways.

These challenges may affect an individual’s ability to communicate dental concerns, follow oral hygiene routines, or access appropriate dental care. Understanding the connection between intellectual disability, developmental disabilities, and oral health is crucial for providing the right support and ensuring that every individual receives the dental care they need to thrive.

Understanding Intellectual Disability and Its Impact on Dental Health

For individuals with intellectual disability, challenges in adaptive functioning can make it difficult to maintain consistent oral hygiene routines, describe pain or discomfort, or adapt to new environments, such as a dental office. For example, someone with cerebral palsy may have limited muscle control, making it hard to brush or floss their teeth effectively. Individuals with autism may experience sensory sensitivities that make dental visits overwhelming, while those with a brain injury might struggle with memory or communication, further complicating oral health care.

Research from the National Institute of Dental and Craniofacial Research (NIDCR) highlights that people with intellectual and developmental disabilities are at a higher risk for oral health problems, including tooth decay, gum disease, and oral infections. These risks often result from a combination of factors: difficulties with daily oral hygiene, limited access to dental care, and underlying medical conditions that can affect the mouth and teeth. The NIDCR has made dental and craniofacial research in this area a priority, recognizing the need for tailored approaches to improve outcomes for this population.

Addressing these unique needs requires a personalized approach. Adaptive dental equipment, such as specially designed toothbrushes or flossing aids, can help individuals with limited physical ability maintain better oral hygiene. Using fluoride toothpaste and demonstrating proper brushing and flossing techniques are essential steps in preventing dental disease. Social skills training and support can also empower individuals with intellectual disabilities to communicate their needs and navigate dental appointments with greater confidence.

Families and supporters play a crucial role in maintaining oral health for people with intellectual and developmental disabilities. This includes helping with daily routines, scheduling regular dental check-ups, and advocating for specialized dental care when necessary. Education on oral health, tailored to the individual’s learning style and abilities, can make a significant difference in long-term outcomes.

In addition, individuals with an intellectual disability may be eligible for disability benefits and support services that can help cover the cost of specialized dental care, adaptive equipment, and oral health education. Organizations such as the American Association on Intellectual and Developmental Disabilities (AAIDD) offer valuable resources and guidance to families and professionals seeking to improve oral health for this community.

Ultimately, understanding how intellectual disability and other developmental disabilities affect oral health is key to providing effective, person-centered support. By recognizing the unique challenges faced by individuals with intellectual and developmental disabilities and working collaboratively with families, caregivers, and dental professionals, we can help ensure that everyone has the opportunity to achieve and maintain good oral health—improving quality of life and overall well-being.

Why Oral Health Disparities Exist in IDD Populations

One of the biggest challenges in IDD dental care is a lack of access and preparedness within the healthcare system. Many dental and medical professionals receive little to no training in treating people with IDD, which leads to discomfort, avoidance, and ultimately fewer care options. As Dr. Wong explained, clinicians often “don’t treat what they’re not comfortable with,” creating systemic gaps in care.

These gaps are compounded by social determinants of health. Transportation barriers, limited insurance coverage (especially under Medicaid), and long travel distances to qualified providers all contribute to missed or delayed dental visits. In addition, individuals with IDD may need to qualify for specific dental programs or support services, such as the TxHmL program, based on meeting certain eligibility requirements, which can further complicate access to care. What may appear as non-compliance is often the result of structural challenges—not a lack of willingness to receive care.

 

The Hidden Impact of Poor Oral Health

 

Dental health is a gateway to the entire body. Poor oral health can trigger widespread inflammation, allowing bacteria from the mouth to enter the bloodstream and affect multiple systems. Infections originating in the mouth can spread to other parts of the body and may present with a range of symptoms, such as fever, swelling, or changes in behavior, which caregivers should monitor closely. Research and clinical experience show links between oral disease and conditions such as cardiovascular disease, pneumonia, diabetes complications, and even cognitive decline.

For people with IDD, who may already have complex health profiles, this connection is even more significant. Oral health issues can also contribute to pain, behavioral changes, and decreased quality of life, often without being immediately recognized as the root cause.

 

Understanding the Real Causes of Dental Issues

 

It’s easy to assume that cavities are simply the result of poor brushing habits, but the reality is more complex. Oral health is largely driven by the environment within the mouth—specifically, the balance of bacteria and acidity.

When saliva is healthy and neutral in pH, it helps protect teeth and prevent decay. But many people with IDD take medications that reduce saliva production, leading to dry mouth and increased cavity risk. Frequent snacking, dehydration, and acidic beverages can further disrupt this balance, creating conditions that allow harmful bacteria to thrive. Dental issues are more likely to occur in situations where these risk factors are present, especially for individuals with intellectual and developmental disabilities whose physical, intellectual, or emotional development may impact their ability to maintain oral hygiene.

This shift toward an acidic environment leads to demineralization, stripping essential minerals from teeth and making them more vulnerable to decay. The good news is that this process is reversible with the right preventive strategies.

 

Prevention Over Intervention: A New Approach to Dental Care

 

One of the most important takeaways from the discussion is that dental care should not begin in the dentist’s chair. It should start long before the appointment. Prevention is more than a clinical responsibility; it’s a shared effort between providers, supporters, and caregivers.

At home, supporters can help prepare people with IDD for successful dental visits by introducing simple, familiar routines. Practicing opening the mouth, counting teeth, or using a flashlight to simulate an exam can reduce anxiety and build trust. Developing social, academic, and other skills, such as communication and problem-solving, is also essential for helping individuals with IDD feel more comfortable and confident during dental visits.

Even small steps, like watching videos of dental visits or completing paperwork in advance, can make a significant difference.

Equally important is understanding sensory preferences. Bright lights, unfamiliar sounds, and long wait times can quickly become overwhelming. By communicating these needs to dental offices in advance, supporters can help create a more accommodating, person-centered experience.

 

Building Better Dental Experiences Through Trust

 

For many people with IDD, the biggest barrier to dental care is the experience. Trust takes time, and successful visits often require flexibility. Instead of trying to complete everything in one appointment, providers and supporters should focus on what the person can tolerate in that moment.

This might mean shorter visits, gradual exposure, or multiple appointments to complete care. Bringing comfort items, using familiar communication tools, and allowing the person to signal when they need a break can all contribute to a more positive experience.

When dental care is approached as something done with a person rather than to them, outcomes improve, not just clinically, but emotionally as well.

 

Role of Support Systems in Dental Health

 

Support systems—including family members, supporters, and healthcare professionals—are essential for promoting and maintaining dental health in individuals with intellectual and developmental disabilities. These support networks assist with daily oral hygiene tasks, help schedule and attend dental appointments, and advocate for the individual’s needs within the healthcare system. For individuals living in a group home, coordinated support is essential for maintaining daily oral hygiene and ensuring access to dental care.

The National Institute of Dental and Craniofacial Research (NIDCR) offers valuable resources to guide families and providers in supporting oral health for people with IDD. Additionally, support systems can help individuals navigate the process of qualifying for disability benefits and accessing specialized dental care services. Regular dental care also helps detect early signs of diseases like cancer, diabetes, and HIV/AIDS, which can manifest as infections or oral symptoms. By working together, these networks ensure that individuals with intellectual and developmental disabilities receive the comprehensive dental and craniofacial care they deserve.

Dental Care Considerations

Providing dental care for individuals with intellectual and developmental disabilities requires thoughtful planning and adaptation. Specialized equipment, such as adaptive toothbrushes, and a supportive, comfortable environment can make dental visits more successful. The Centers for Disease Control and Prevention (CDC) recommends regular dental check-ups, consistent oral hygiene, and a balanced diet to help prevent common oral health problems such as tooth decay and gum disease.

People with intellectual disabilities may face increased risk for dental disease due to factors such as poor nutrition, tobacco use, or side effects from medications. By offering tailored support and following best practices, caregivers and dental professionals can help individuals with intellectual and developmental disabilities maintain good oral health and overall well-being.

 

Minimally Invasive Solutions Are Changing the Game

 

Advancements in dentistry are making it easier to treat cavities without invasive procedures. One of the most promising tools discussed in the webinar is silver diamine fluoride (SDF), a topical treatment that can stop cavity progression, reduce sensitivity, and strengthen teeth—all without drilling or anesthesia.

SDF represents a major shift toward minimally invasive care, especially for people who may struggle with traditional dental procedures. It allows providers to stabilize dental issues quickly while creating time for desensitization and future treatment planning.

These types of innovations are critical in expanding access to care and reducing the need for more complex interventions later.

 

The Role of Training and System Change

 

Improving oral health outcomes for people with IDD is not just about individual actions—it requires systemic change. Organizations like the American Academy of Developmental Medicine and Dentistry are working to ensure that healthcare professionals receive the training they need to provide competent, compassionate care.

New initiatives, such as national IDD-focused curricula for dental education, are helping bridge the knowledge gap and prepare future providers to meet the needs of this population.

But training alone isn’t enough. True progress will require continued advocacy, policy changes, and a commitment to equitable care across healthcare systems.

 

Moving Forward: A Prevention-First Mindset

 

The future of dental health for people with IDD depends on a shift in mindset—from reactive treatment to proactive prevention. By addressing barriers to access, improving provider training, and equipping supporters with practical tools, we can reduce preventable dental issues and their broader health consequences.

Oral health is foundational to overall health. And for people with IDD, investing in prevention is essential.

 

Additional Resources:

Rethinking Autism Support: Person-Centered Support in Practice  

Rethinking Autism Support: Person-Centered Support in Practice

 

April is Autism Awareness Month, which brings important visibility to the experiences of people with autism. For many families, providers, and supporters, awareness alone does not answer the question that they face every day: what does meaningful, person-centered support actually look like in practice?

Autism Spectrum Disorder (ASD) is a complex neurodevelopmental condition that presents a wide range of strengths and challenges. Some people with autism may experience differences in social skills, repetitive behaviors, speech. These differences can affect how a person interacts with the world, making it essential for supporters to approach each person with acute awareness and understanding of their individual needs. According to recent data, autism spectrum disorder affects about 1 in 31 children and 1 in 45 adults in the United States, highlighting the importance of developing effective support strategies across the lifespan.

Because the skills and challenges associated with autism are so varied, Person-Centered Thinking is crucial. This approach recognizes that each person’s experience is unique and that support should be tailored to their specific strengths, preferences, and needs. Person-Centered Thinking empowers people with autism to exercise positive control over their daily lives, fostering greater independence and self-direction. By focusing on the person rather than the diagnosis, supporters can build more meaningful relationships and create environments where people with autism can thrive.

 

What Person-Centered Support Looks Like in Practice

 

Support happens in busy homes, schools, communities, clinical environments, workplaces, and social settings. It happens when a person is overwhelmed, when communication is unclear, or when something feels “off” but cannot be easily explained. These situations often occur unexpectedly, are easily misinterpreted, and can be difficult to navigate, leading to responses that unintentionally escalate the situation rather than support the person.  Person-centered support begins in those moments—not with a protocol, but with perspective.

Person-centered support is not about applying a standardized approach, but instead, it is about getting to know what a person values and the support they need to have a meaningful life. It means participating in discovery to recognize rituals and routines that have meaning, identifying what contributes to a good day or a bad day, and what is being communicated through actions and unspoken cues.

In practice, this often looks like slowing down and getting to know a person. It looks like taking the time to ask what the person may be experiencing rather than focusing only on what is happening on the surface. It looks like consistency in responses, predictability in routines, and a willingness to adapt support strategies as needs evolve. Person-centered support is not just a set of abstract ideas; it helps people live their best lives.

 

Why Training Is the Difference Between Reacting and Responding

 

Many supporters are expected to navigate this complexity without the necessary skills. Workforce challenges across services for people with autism and other developmental disabilities continue to grow, and staff are often balancing high demands, limited resources, and emotionally intense situations.

In this environment, even experienced professionals can find themselves reacting in the moment rather than responding with clarity. Ongoing education changes that dynamic. Teaching supporters Person-Centered Thinking skills is essential for equipping them to provide value-based, personalized support. helps supporters identify valuable information, ensuring everyday moments are both shared and used to create better experiences across a variety of settings. As supporters are better equipped with knowledge and understanding of the person, they are better suited to identify when events are an emotional, medical, or mental health response and are prepared to respond effectively to the person’s needs. Over time, this shift reduces crisis-driven responses and builds a more proactive, stable support environment

 

The Role of Person-Centered Services in Autism Support

 

Person-Centered Thinking asks a simple but powerful question: Who is this person, and what matters to them?

For someone with autism, the answer may include sensory preferences, communication styles, routines, interests, and deeply meaningful relationships. Involving families and those who know the person best in planning and support decisions is crucial, as their experiences and insights can greatly enhance the quality of person-centered planning.

When support is truly person-centered, it reflects those individual factors. It honors routines that provide stability, adapts environments to reduce stress, and builds trust through consistency and understanding. Person-centered planning supports students with autism in educational settings and helps prepare them for job opportunities, ensuring they are actively involved in shaping their own paths. Over time, the transitions continue to evolve into adulthood and aging support. Done well, Person-Centered Thinking can support the person across their life, adapting to ever-changing desires and needs.

It recognizes that effective support is not about changing the person, but about aligning support with who they are and where they are. Person-centered support emphasizes the person’s strengths, gifts, and talents because we all have something to contribute at each stage of life. Effective support strategies can positively affect outcomes for people with autism, improving their quality of life and community participation.

 

Social and Community Inclusion

 

Engaging in social and community life is an essential component for anyone to live a fulfilling life, and people with autism are no different. Person-Centered Thinking is at the heart of promoting true inclusion, as it ensures that support is tailored to each person’s strengths, interests, and needs. For people with autism spectrum disorder, this means having meaningful opportunities to participate in community activities that reflect their unique preferences, whether that’s joining a sports league, attending a club focused on a specific interest, or exploring competitive employment opportunities.

Person-centered planning is a powerful tool in this process. By involving the person in every step of discovery and planning, supporters can help people with autism develop the skills and confidence needed to engage fully in community life. This approach helps build social skills and a sense of belonging and purpose. Ultimately, social and community inclusion is a key factor in improving quality of life and everyone an opportunity to thrive.

 

From Awareness to Action

 

Autism Awareness Month is an opportunity to move beyond understanding and into action. Awareness alone does not improve outcomes. An autism diagnosis can significantly influence societal perceptions, access to support, and the rights of people with autism, shaping how they are treated and what resources are available to them. What makes a difference is the ability to recognize needs earlier, respond more effectively, and create environments where people with autism can thrive.

If your team is looking to strengthen person-centered support, ongoing training through IntellectAbility Academy and Person-Centered Thinking Training can help build the consistency and confidence needed across your organization. You can also explore how Person-Centered Services provide a framework for aligning support with what truly matters to each person.

 

 

Additional Resources:

 

Rural Health Transformation Program: What Healthcare Reform Means for Access, Coverage, and Disability in Rural America

Rural Health Transformation Program: What Healthcare Reform Means for Access, Coverage, and Disability in Rural America

 

Across rural America, healthcare reform is no longer theoretical. It’s happening in real time.

The Rural Health Transformation Program (RHTP) is driving billions of dollars into rural health systems, with the goal of improving access, expanding coverage, and strengthening healthcare providers across rural communities. But as these plans take shape across states and fiscal years, a critical question remains:

Who is this transformation actually reaching—and who is still being left out?

 

Rural Health in America Has an Access and Coverage Problem

 

Rural health has long been defined by gaps in access.

Across rural areas, people face:

  • Fewer healthcare providers
  • Limited hospital infrastructure
  • Longer travel times to receive care
  • Reduced access to specialty services

Patients in rural communities often struggle to find the help they need to access care, facing unique barriers that can make it difficult to obtain necessary services.

These challenges directly impact health coverage outcomes for patients, particularly those relying on Medicaid and Medicare in rural communities.

Hospitals in rural America are closing or consolidating. Healthcare providers are stretched thin. And access to consistent, preventative care remains limited.

The Rural Health Transformation Program was designed to address exactly these issues—by investing in systems that improve access and stabilize healthcare delivery across rural areas.

The Rural Health Transformation Program Is Reshaping Healthcare Plans Nationwide

 

Under the Rural Health Transformation Program, states are developing healthcare plans that focus on:

  • Expanding access to healthcare
  • Strengthening rural hospitals
  • Supporting healthcare providers
  • Improving coverage and care coordination
  • Investing in long-term system sustainability across fiscal years

For many people in rural areas, these changes could be the difference between accessing life-saving, sustaining health care and not.

These plans are not static—they evolve year over year for the next five years, with funding tied to outcomes and performance.

That means states are being pushed to demonstrate real improvements in:

  • Access to services
  • Health coverage utilization
  • Chronic disease outcomes
  • System-wide efficiency

But while these plans are comprehensive, they are not always inclusive.

 

Program Funding and Structure: How the Rural Health Transformation Program Works

 

The Rural Health Transformation Program is one of the most ambitious investments in rural health care America has ever seen. With a total commitment of $50 billion spread over five fiscal years, the program is designed to address the unique challenges facing rural areas—ensuring that access to quality health care is not determined by geography.

Each fiscal year, beginning in 2026 and continuing through 2030, $10 billion in funding will be made available to qualifying states approved to participate in the program. This annual allocation is intended to provide consistent, reliable resources for rural hospitals, clinics, and health care providers, allowing them to plan, innovate, and deliver better care over time.

The program’s structure is built around accountability and results. States must submit detailed plans outlining how they will use the funding to improve access, strengthen rural health systems, and address the needs of their communities. Funding is tied to measurable outcomes, ensuring that every dollar invested leads to real improvements in health care delivery and coverage for rural Americans.

By distributing resources over multiple fiscal years, the Rural Health Transformation Program aims to give rural communities the stability and support they need to make lasting changes. This approach not only helps hospitals and providers adapt to evolving health care needs, but also ensures that individuals and families in rural areas can count on better access to care—now and in the future.

For organizations and agencies working to support people with disabilities and other vulnerable populations, understanding how this program is structured is key to finding new opportunities for collaboration, funding, and improved health outcomes. To learn more about how your state can participate or to find resources for your organization, visit the official program website or contact your state health department.

 

Disability Is Still Missing From Rural Healthcare Reform

 

Disability health—especially for people with intellectual and developmental disabilities (IDD)—is often absent from large-scale healthcare reform conversations.

And yet, the data is clear.

People with disabilities experience:

  • Higher rates of hospitalization
  • Increased reliance on emergency services
  • More complex chronic health conditions
  • Lower access to preventative care

In rural communities, these challenges are intensified.

Limited access to trained healthcare providers, fewer hospitals, and fragmented coverage systems create additional barriers for people with disabilities trying to navigate care.

This is where the Rural Health Transformation Program has the potential to make a difference—but only if disability is intentionally included in how these plans are designed.

 

Access Is About the Right Care

 

Expanding access is one of the primary goals of rural healthcare reform.

But access is not just about getting someone into a hospital or in front of a provider.

It’s about whether that care is:

  • Appropriate
  • Informed
  • Preventive rather than reactive

For people with disabilities, access often breaks down at the point of care.

Even when hospitals are available and healthcare providers are accessible, there may be gaps in training, communication, and understanding that impact outcomes.

That means increasing access without improving provider readiness does not fully solve the problem.

 

Medicaid, Medicare, and Coverage Gaps in Rural Communities

 

Coverage is another central focus of the Rural Health Transformation Program.

In rural America, a significant portion of the population relies on Medicaid and Medicare for health coverage. These programs play a critical role in ensuring access to hospitals, providers, and essential services.

However, coverage alone does not guarantee access.

Gaps still exist in:

  • Provider availability
  • Service delivery
  • Care coordination across systems

For people with disabilities, these gaps can result in:

  • Delayed care
  • Increased emergency department visits
  • Higher long-term healthcare costs

This is where healthcare reform must go beyond expanding coverage—and focus on how that coverage translates into real, usable access.

 

Rural Hospitals and Providers Are Under Pressure

 

Rural hospitals and healthcare providers are central to the success of the Rural Health Transformation Program.

But they are also operating under significant strain.

Workforce shortages, financial pressures, and increasing demand are forcing hospitals and providers to do more with less—especially across multiple fiscal years where funding and performance are closely tied.

Healthcare providers in rural areas are expected to:

  • Deliver high-quality care
  • Manage chronic disease
  • Navigate Medicaid and Medicare systems
  • Adopt new technologies
  • Improve outcomes

All while serving populations with increasingly complex needs.

Without targeted support—including training related to disability health—these expectations become difficult to meet.

 

The Opportunity Within Rural Healthcare Reform

 

The Rural Health Transformation Program represents one of the largest investments in rural health in recent history.

It has the potential to:

  • Improve access across rural communities
  • Strengthen hospitals and healthcare providers
  • Expand coverage through Medicaid and Medicare
  • Reduce long-term healthcare costs
  • Improve outcomes across populations

But transformation does not automatically lead to equity.

If disability is not explicitly included in rural healthcare plans, the same disparities will continue—just within a more modernized system.

 

The Bottom Line

 

Rural healthcare reform is advancing quickly.

Access is expanding. Coverage is evolving. Healthcare providers and hospitals are adapting to new expectations.

But the success of the Rural Health Transformation Program will ultimately be measured by who benefits from it.

Because improving rural health in America isn’t just about systems.

It’s about making sure those systems work for everyone—including people with disabilities.

 

Take the Next Step

 

The Health Risk Screening Tool (HRST®): Changing Outcomes for People with IDD by Detecting Risks Earlier

The Health Risk Screening Tool (HRST®): Changing Outcomes for People with IDD by Detecting Risks Earlier

The Health Risk Screening Tool (HRST®): Changing Outcomes for People with IDD by Detecting Risks Earlier

 

Providers supporting people with intellectual and developmental disabilities (IDD) know that health issues rarely appear overnight. In many cases, subtle changes in behavior, energy, mobility, appetite, or routine may signal an emerging medical concern. These changes can be early indicators of illness or even risk of death if not addressed. When these early signs go unnoticed, what begins as a manageable issue can escalate into a behavioral crisis, an emergency department visit, or even a hospitalization.

For organizations responsible for supporting people with complex needs, identifying those early warning signs is one of the greatest challenges in delivering safe, effective support. Staff must interpret behavioral changes, communicate across interdisciplinary teams, and make decisions with limited clinical information. Without structured systems for identifying medical risk, opportunities for early intervention are often missed.

A recent pilot implementation of the Health Risk Screening Tool (HRST) at Threshold Residential Services provides insight into what can happen when those early warning signs are systematically identified and addressed. The HRST provides answers to key health risk questions and supports assessment across different age groups.

 

A Pilot Focused on Proactive Health Monitoring

 

Threshold Residential Services implemented HRST screenings for 51 adults with intellectual and developmental disabilities receiving residential services. The screenings were conducted between August 2024 and January 2025 and were designed to identify potential health risks across multiple areas that commonly contribute to medical instability in people with IDD.

The HRST evaluates 22 areas of health risk, including factors such as eating and nutrition, bowel function, skin integrity, falls, aggression, and self-injury. Each screening generates a Health Care Level (HCL), which reflects an individual’s overall level of medical risk and helps guide monitoring and care planning.

To evaluate the impact of HRST implementation, Threshold Residential Services compared outcomes from calendar year 2024, before HRST screening was implemented, with outcomes from calendar year 2025 following implementation.

The results were striking.

 

Fewer Behavioral Crises Following HRST Implementation

 

One of the most notable outcomes observed during the pilot was a significant reduction in behavior-related unusual incidents. In 2024, the organization recorded 55 behavior-related incidents involving peer aggression, self-injurious behavior, or destruction of property. In 2025, following HRST implementation, that number dropped to 24.

This represents a 56% reduction in behavior-related incidents.

Behavioral changes are often among the earliest indicators that something may be medically wrong. Pain, discomfort, infection, or other health concerns can manifest as agitation, withdrawal, or aggression, particularly when individuals have difficulty communicating their symptoms.

By helping teams identify potential medical risks earlier, HRST screening supported more proactive responses to emerging health concerns. Addressing those concerns earlier likely prevented situations that might otherwise have escalated into behavioral crises. This highlights the importance of early intervention, ensuring their health and safety are prioritized.

 

Reductions in Hospitalizations and Emergency Department Visits

 

The pilot also demonstrated measurable reductions in acute medical utilization.

Unanticipated hospitalizations declined from 8 in 2024 to 4 in 2025, representing a 50% reduction. Using a conservative estimate of $30,000 per hospital admission, this reduction represents approximately $120,000 in avoided hospital costs.

Emergency department utilization also declined, from 7 visits in 2024 to 4 in 2025. Based on national cost estimates for emergency department visits among people with IDD, this reduction represents approximately $16,290 in avoided costs.

Combined, these reductions represent an estimated $136,290 in direct medical cost avoidance in a single year.

What’s more, these figures do not include additional operational costs associated with hospitalizations and emergency visits, such as staff supervision, transportation, documentation, care coordination, or disruptions to daily programming.

 

Health Care Access and Quality for People with IDD

 

Access to high-quality health care is a critical factor in determining health outcomes for people with intellectual and developmental disabilities. Unfortunately, many people with IDD encounter significant barriers, such as limited health insurance coverage, high out-of-pocket costs, and a shortage of providers trained to address their specific needs. These challenges can delay diagnosis and treatment, increasing the risk of health problems and certain diseases.

To deliver effective care, health care providers must consider each person’s intellectual functioning and adaptive behavior when developing individualized health care plans. Tailoring services to the unique needs of people with intellectual disability or developmental disabilities ensures that preventive measures, such as screening tests, are accessible and meaningful. Early identification of health risks allows for timely intervention, reducing the likelihood of more serious health issues in the future.

Family and supporter involvement is also essential. Parents and supporters often have valuable insights into the individual’s needs, preferences, and daily routines, which can inform support planning and improve outcomes. By prioritizing accessible, person-centered health care and involving families and supporters in the process, providers can help people with IDD achieve better health and a higher quality of life.

 

Stability Matters for People with IDD

 

While cost savings are an important outcome for health systems and provider organizations, the impact of preventing medical crises extends far beyond financial measures.

Hospitalizations and emergency department visits can be particularly disruptive for people with IDD. Sudden changes in environment, unfamiliar medical settings, and interruptions in daily routines can increase stress and anxiety, sometimes leading to regression in skills or behavioral instability.

Preventing those destabilizing events helps people maintain their routines, remain engaged in their communities, and continue building independence.

For provider organizations, fewer crises also mean more stable environments for both the people they support and the staff delivering care. Expanding proactive health monitoring through a health risk screening tool can help more people access preventive support and ensure that those at risk receive timely interventions to address emerging health concerns.

A Shift from Crisis Response to Prevention

 

The findings from the Threshold Residential Services pilot reinforce an important shift taking place across disability services and healthcare systems more broadly: moving from reactive crisis management to proactive health monitoring.

Structured health risk screening tools like HRST give teams a consistent framework for identifying medical concerns earlier and coordinating responses across interdisciplinary care teams. Rather than waiting until a crisis occurs, providers are better equipped to intervene before health conditions escalate.

While additional research across larger populations will further strengthen the evidence base, the results observed in this pilot highlight the potential impact of proactive health risk screening within residential service settings.

For organizations supporting people with intellectual and developmental disabilities, earlier detection of health risks can mean fewer crises, fewer hospitalizations, and better outcomes for the people they serve.

 

Additional Resources:

 

Prevention Saves Lives and Dollars: The Cost-Saving Power of HRST

Prevention Saves Lives and Dollars: The Cost-Saving Power of HRST

 

A Smarter Investment in Healthcare

 

Healthcare costs continue to rise, and for organizations supporting people with intellectual and developmental disabilities (IDD), finding ways to deliver excellent care while protecting resources is a constant challenge.

The Ohio Department of Developmental Disabilities (OH DODD)’s evaluation of the Health Risk Screening Tool (HRST®) shows that prevention is the answer. The HRST was developed by and is exclusive to IntellectAbility to help organizations assess health risks for people with IDD.

 

What is the HRST?

 

The HRST is the leading screening tool for intellectual and developmental disability (IDD) risk management and support. It is a HIPAA-compliant, web-based rating instrument developed to detect health destabilization in at-risk populations and ensure that proper care and support are provided at all times to avoid unnecessary suffering and death.

The HRST monitors for health risks associated with various intellectual, developmental, and physical disabilities, which specifically affect systems of the body and the person’s ability to engage in life. This provides all supporters with the information needed to respond appropriately.

By identifying risks early, the HRST allows teams to assess an individual’s ability to perform daily activities and monitor body health, enabling action before issues become emergencies. The HRST assigns risk levels based on established criteria.

The HRST provides valuable information that helps teams understand and learn about health risks. This can lead to significant benefits for both individuals and organizations. Early identification of health risks can also support eligibility for disability benefits.

 

What Ohio Found

 

Supporters eligible to participate in the evaluation made one thing clear: the HRST makes a real difference.

  • 79% expected fewer ER visits.
  • 69% expected fewer unnecessary medications.
  • 77% expected overall cost savings.

To ensure ongoing monitoring and support, regular HRST assessments should be scheduled over time.

Organizations looking for similar positive outcomes can use the HRST to support their teams and improve care. Consistent use of the HRST at different times helps maintain health and prevent emergencies.

Every avoided hospitalization or fall isn’t just a financial win. It means someone’s life was made safer, healthier, and less traumatic.

 

From Reactive to Proactive Risk Reduction

 

Traditionally, healthcare systems have spent most of their resources reacting to crises. The HRST flips that model. As one of the essential tools developed for risk reduction, the HRST gives agencies clear, objective insights, enabling proactive planning that prevents emergencies before they happen. Continuous oversight of health risks is crucial for effective risk reduction and operational stability.

For providers and payers, this shift is powerful. It means the HRST enables a range of solutions and actions that organizations can implement to start proactive planning, including:

  • More accurate, individualized health plans.
  • Reduced waste on avoidable care.
  • Better outcomes for people supported.
  • A more sustainable system overall.
  • Support for field teams in their on-site work to assess and address risks.

These changes help teams respond appropriately to health risks and achieve effective risk reduction. The HRST enables organizations to expand their services and better protect the people they support. It also supports the work of healthcare professionals in the field, helping them deliver practical, on-site solutions.

 

The Bottom Line

 

The Ohio evaluation confirms what we’ve long known: investing in prevention is both the ethical and financially sound choice, and aligns with our mission to provide quality care.

With the HRST, organizations don’t have to choose between quality care and cost savings. They can achieve both while enhancing their service offerings and demonstrating a commitment to serving people with IDD. It is tested and trusted to deliver reliable results.

To read the full report, click here. For more resources, visit IntellectAbility’s website.

Health & Safety Training That Meets the Real Risks Facing People with IDD

Intellectability Academy: Health & Safety Training That Meets the Real Risks Facing People with IDD

Intellectability Academy: Health & Safety Training That Meets the Real Risks Facing People with IDD

 

Health and safety for people with intellectual and developmental disabilities (IDD) is rarely about a single crisis moment. More often, it is shaped by everyday decisions — how meals are prepared, how pain is noticed or missed, how equipment is maintained, how medications accumulate over time, and how communication either builds trust or creates confusion, while challenging behaviors and mental health concerns can also signal underlying risks. These are not abstract concerns. They are the moments where risk quietly grows, or where prevention can truly take root.

For provider agencies and support teams in community-based support environments, the challenge is clear: traditional training often focuses on compliance or isolated topics, while real-world risk is layered, ongoing, and deeply human. Recognizing this gap, IntellectAbility developed a new Health & Safety eLearn course series designed to address the realities of day-to-day IDD support.

 

Why Everyday Health & Safety Training Matters for People with IDD

 

Many of the most serious health outcomes for people with IDD are linked to issues that begin quietly: unsafe mealtime practices, unrecognized pain, poorly fitting or neglected medical equipment, communication barriers, or the cumulative effects of multiple medications. These risks often unfold gradually and can be overlooked in busy support environments.

Direct Support Professionals (DSPs), house managers, support coordinators, supporters, and families are on the front lines of these moments. Yet they are frequently expected to identify, document, and respond to complex health concerns, including recognizing symptoms that may indicate underlying issues, without training that reflects the nuances of their role. Effective health and safety education must therefore do more than deliver information — it must build observation skills, confidence, and practical decision-making that translates into safer outcomes.

 

A Practical, Layered Approach to Learning

 

The Health & Safety eLearn Courses were intentionally designed as a flexible yet cohesive training series. The courses form a structured curriculum specifically developed for professionals working in IDD support services — such as adult day programs and residential care centers — ensuring practical application and immediate relevance to daily needs. Each course can be taken individually to address a specific training need, allowing organizations to respond quickly to identified gaps or priority areas. At the same time, the courses were developed to build upon one another, reinforcing shared concepts such as observation, documentation, communication, and risk awareness across multiple health and safety domains.

When licensed together as a complete package, the six courses create a more comprehensive learning pathway — one that mirrors how risk actually presents in real life. Mealtime safety connects to communication. Pain recognition intersects with polypharmacy. Equipment maintenance influences mobility, comfort, and overall health. Taken as a whole, the series strengthens teams’ ability to recognize patterns, not just isolated issues, and respond earlier and more effectively. The delivery of these courses is designed to support different learning needs, offering flexible online access and self-paced modules.

These courses are intended for provider agencies, clinicians, and support staff who work with people with intellectual and developmental disabilities, equipping them with practical skills to improve health and safety outcomes.

 

What the Six Courses Cover

 

Diet & Meal Planning for Provider Agency Staff

Mealtime is one of the most routine — and riskiest — parts of daily support. This course helps staff interpret diet orders, plan meals that respect both nutritional needs and personal dignity, and consider the unique needs of children with IDD, as well as shop and prepare food safely for people with allergies, texture modifications, or special dietary requirements. Improper diet or unsafe mealtime practices can contribute to illness in people with IDD.

 

Plate It Safe: Avoiding Mealtime Risks

 

Unsafe mealtime practices remain a leading cause of preventable health emergencies. This course addresses the “Dangerous Dozen” mealtime risks, silent aspiration, and the importance of observing and supporting DSPs in maintaining safe, respectful eating environments, as well as the need to report any incidents or concerns promptly. Tailored learning tracks ensure relevance for both provider staff and support coordination roles.

Techniques in Proper Maintenance of Durable Medical Equipment

 

Durable medical equipment, particularly wheelchairs, plays a crucial role in enhancing comfort, mobility, and safety, with employees responsible for regular checks to ensure proper function and a proper fit.

Learners gain practical guidance on routine maintenance, recognizing poor fit or discomfort, and understanding when issues require reporting or professional intervention, as certain equipment problems may point to broader health or safety concerns.

 

Effective Communication for Direct Support Professionals

 

Communication is foundational to health, safety, and trust; applying key principles of effective communication is essential for achieving positive outcomes. This course explores expressive and receptive communication, presuming competence, recognizing emotional and psychological discomfort, and using person-centered strategies to de-escalate challenging situations and strengthen relationships, incorporating trauma-informed care approaches.

 

Understanding Polypharmacy

 

Medication management can become increasingly complex over time, especially when addressing the mental health needs of individuals with IDD. This course introduces the concept of polypharmacy and helps learners recognize potential concerns, monitor medication use, and understand how medication-related risks can occur gradually, as well as when additional oversight or review may be necessary.

 

Understanding and Recognizing Pain in People with IDD

 

Pain is often underrecognized in people with IDD, particularly when communication barriers exist. This course builds skills in identifying physical, behavioral, and emotional indicators and symptoms of pain, as well as documenting and reporting concerns effectively to healthcare professionals and collaborating with nurses for comprehensive pain assessment.

 

Built for Individual Learning — Stronger as a Series

 

Organizations may choose to assign individual courses based on role, experience level, or immediate needs. However, when implemented as a full series, the Health & Safety eLearn Courses offer a more integrated training experience. These programs are designed to enhance staff skills, support employee retention, and foster leadership development within IDD service providers. Concepts introduced in earlier courses are reinforced and expanded upon in later ones, supporting deeper understanding and more consistent application across teams.

This approach allows agencies to scale training strategically, starting where it makes sense, while working toward a shared foundation of health and safety knowledge that supports consistency, oversight, and quality across services.

 

Who These Courses Are Designed For

 

The Health & Safety eLearn series supports a wide range of roles across the IDD system, including DSPs, house managers, support coordinators, intensive support coordinators, planning list administrators, state support staff, frontline supervisors, and providers. Each course is intentionally structured to align with the responsibilities these professionals carry every day, making the learning immediately applicable whether taken alone or as part of the full package.

Completing these trainings can also enhance employment opportunities for participants by equipping them with specialized skills valued in the IDD field.

 

Flexible Learning That Fits Real Work Environments

 

All six courses are available 24/7 through IntellectAbility’s eLearning Platform (eLP), allowing learners to progress at their own pace. The platform automatically tracks progress, monitors completion, and generates certificates to support oversight and regulatory requirements. Many modules also offer continuing education credits for professionals, supporting licensing and certification needs.

No additional downloads are needed — everything is accessible directly through the platform, with course development managed by our dedicated Productions department.

IntellectAbility develops training courses in partnership with recognized organizations to ensure high-quality, specialized content for the IDD community.

Accessibility Features That Empower Every Learner

 

Ensuring that every learner can access and benefit from training is fundamental to quality support for people with intellectual and developmental disabilities. IntellectAbility’s Health & Safety eLearn Courses are designed with accessibility at their core, recognizing that both individuals with disabilities and the direct support professionals who serve them deserve inclusive, barrier-free education.

By prioritizing accessibility, IntellectAbility empowers direct support professionals and direct support staff to gain the knowledge and skills needed to provide high-quality, person-centered support. This commitment extends to all individuals—whether they are learning to better serve people with intellectual disabilities, developmental disabilities, or other complex needs. Accessible training materials help ensure that no one is left behind, supporting the development of a more skilled, confident, and inclusive workforce.

Ultimately, accessible education is about more than compliance—it’s about equity, dignity, and the ability for every person to learn, grow, and contribute. With these features in place, organizations can be confident that their teams are equipped to provide direct support that truly meets the needs of people with IDD, fostering safer, healthier, and more inclusive communities.

 

Strengthening Safety, Dignity, and Quality of Life

 

Health and safety training should never feel disconnected from the people it is meant to protect. By offering both individual courses and a comprehensive, integrated series, the Health & Safety eLearn Courses provide organizations with the flexibility they need, allowing centers, such as state-supported living centers, to implement the training and improve the safety and quality of life for people with IDD. When staff are equipped to recognize early warning signs, communicate effectively, and respond thoughtfully across multiple domains, the result is not just reduced risk. It is safer systems, stronger teams, and a better quality of life for the people they support.

 

Additional Resources:

–          Learn more and enroll in these courses

–          Explore the IntellectAbility Academy and browse full course offering

–          Download the Health and Safety Course Overview

The Rural Health Transformation Program: The Imperative Role of State Developmental Disability Agencies

The Rural Health Transformation Program: The Imperative Role of State Developmental Disability Agencies

Across the country, states are receiving new federal funding through the Rural Health Transformation Program (RHTP), an initiative designed to strengthen health care access and outcomes in rural and underserved communities. With award amounts now announced, states are moving quickly to design and implement their plans.

For state developmental disabilities agencies, this presents a critical opportunity to help ensure people with intellectual and developmental disabilities (IDD) are included in these efforts from the outset.

What Is the Rural Health Transformation Program?
Authorized under the One Big Beautiful Bill Act (Section 71401 of Public Law 119-21), RHTP provides states with significant funding and flexibility to improve rural health systems. While approaches will vary, common priorities include:

  • Expanding access to care
  • Improving care coordination and quality
  • Strengthening the health workforce
  • Addressing health disparities
  • Advancing technology and innovation

States now have important decisions to make about priority populations, partnerships, and performance measures.

Why This Matters for State DD Systems
People with IDD in rural communities often experience compounded challenges, including limited access to clinicians with IDD expertise, long travel distances, and fragmentation between health care and home and community-based services (HCBS).

State DD agencies play a key role in bridging these systems. Without intentional collaboration, there is a risk that RHTP investments will move forward without fully addressing the needs of people receiving HCBS and other disability services.

Opportunities for State Leadership
As RHTP plans are developed, state DD agencies can help ensure alignment by:

  • Partnering with Medicaid and public health agencies involved in RHTP planning
  • Elevating people with IDD as a priority population within state strategies
  • Bringing HCBS and disability service providers into cross-system discussions
  • Sharing data and insights on health disparities and service gaps in rural IDD populations
  • Encouraging integration between health care delivery and long-term services and supports

Early engagement can help shape not only funding decisions, but also long-term system design.

How IntellectAbility is Supporting IDD Inclusion in RHTP Efforts
IntellectAbility is working to support states and providers in advancing more inclusive health systems. Through tools, training, and data-driven approaches, IntellectAbility helps identify health risks, strengthen quality improvement efforts, and build workforce capacity to better support people with IDD.

These resources can complement state RHTP initiatives by helping ensure that people with IDD are meaningfully included in care models, quality strategies, and outcome measurement. Learn more here.

Looking Ahead
RHTP represents one of the most significant recent investments in rural health. With thoughtful collaboration, it can also serve as a catalyst for better integration between health care and disability services.

State DD agencies have an important role to play in ensuring these efforts lead to meaningful improvements in health outcomes for people with IDD. Prioritizing inclusion now can help build more responsive, equitable systems for the future.

Together, let’s get #IDDinRHTP.